Hello my family and friends,  

I do miss you all so much and pray you are enjoying the glimpses of summer poking through this beautiful springtime rainfall here in Montana. I’ve been meaning to get on for some time to give an update on Bastion. The news is constantly changing and plans evolve leaving me with few facts to report.

Here is my quickest recap. 

Bastion was discharged to me on Christmas Day. Which I find hilarious. “Mary got her baby on Christmas Day”. We finally made it home on Bastion’s 5th month mark. Deucalion was very excited to receive this new playmate. Especially now as Bastion is getting more playful. He will be 10 months old on the 28th. 

Since returning home there has been many appointments and a couple inpatient stays. Bastion may be a chunk but he won’t keep his food down. We are at Community now for that very reason.  The doctors and I have been working closely to try and find a solution for Bastion to keep his food down.  We’ve switched him from a G to a GJ feeding tube. He has received medications and a number of tests to try to help sort out his vomiting issue. We have seen no resolve in this area. We are now one test away from ruling out all the doctors at Community can think of as causes for his continual vomiting. I praise God though, through it all, he is so good! 

On to his heart. 

He received an echo a few weeks ago. His heart looks stable for now. On the echo I was shown two leaflets where the blood flow goes through. These leaflets are supposed to move with the flow of the blood to assist passage. One of his leaflets has frozen and no longer works. If his other leaflet freezes there will not be proper blood flow which means we’d have to go to Seattle for another open heart surgery. His heart looked perfectly repaired just three months prior to this last echo screening. So there is a possibility this second leaflet COULD also freeze in a short period of time. So we are still praying over the same things healing for his heart and healing for his body so he can keep his food down and begin oral stimulation. 

Upcoming plans.

We are headed to Seattle, Lord willing, in two weeks for two full days of follow up appointments. This little gift from heaven keeps us busy! 

We are so grateful for all of your love, prayers, and support over the past year. Thank you all. Please also be messaging my phone or emailing me to let me know how I can be praying for you and your families. Lord bless you all!!