It's been nice to not have test or appointments for 2 months. You start to feel "normal" again. I've been dreading today....the thought of seeing her all hooked up again made my stomach turn. It brings back all the memories from the hospital and after.... I was anticipating the worst but God had us.... Mary Helen was so excited to get her hair braided and up in a high ponytail! With her sweet disposition it was hard to get in my head about the past. I instead was thankful. Thankful that we are here and that she is living her life to the absolute fullest!

Emotions with this are all over the place. I feel like her medical stuff is always lurking around the corner. It's been over six months since her surgery and we are still in this holding pattern of "waiting to see"..... While it is so unsettling it's taught us to have to surrender ourselves to the process. We look at her constantly and think... "how did we make it here" and we know it's by the grace of God! 

Please pray her 24hr EEG comes back normal and we can cross this phase off the list!