Marlene’s Story

Site created on September 1, 2019

In late 2014, I was diagnosed with a very small brain tumor called a meningioma.  I was told it was of no consequence and pretty much ignored it until November of 2016.  As I started noticing differences in my functioning, I was fortunate enough to get an appointment with Dr. Alan Friedman at Duke University's Brain Tumor Clinic.  He thought at that time that the tumor was small and probably wouldn't grow.  He did witness however, that I had a seizure while I was in front of him.   While he suggested a "watch and wait" approach to the tumor, he immediately sent me to see Dr. Radtke, who specializes in Epilepsy.  Having a seizure while in his presence was truly a blessing.  For years I had sought out a reason for these unexplained occurrences, and was told that I should see a psychiatrist by local neurologists.  


After 3 years of continued "watching", my last MRI showed that the tumor had grown large enough that it was pressing further onto my left temporal lobe and causing edema on my brain.  If I don't have the tumor removed, I risk loosing my language skills, my hearing and causing further edema, which can ultimately cause serious problems.  On September 25th, I will be undergoing a craniotomy to remove the tumor.  I feel confident that there will be no complications, leave me with no deficits, and hopefully remedy the seizures I've had over the years.  I've been purchasing all kinds of head gear to hide my beautiful new haircut and lovely scar.  And now I'm creating this Caring Bridge site so my family will be able to keep everyone updated and receive your messages without being inundated with too many calls and texts during this difficult time.


I will look forward to your messages and will make my own entries as I am able.  I truly appreciate all of the love and healing prayers you have sent.
With so much love and gratitude,
Marlene


 

Newest Update

Journal entry by Marlene Barrows

As most of you know, I went to Duke University yesterday to have my neurosurgery fix.  I had my pre-op appointments and then went to meet with my surgeon, Dr. Friedman.  After checking my swelling, he believed that I might be improving enough that he might not be able to find the leak.  He said he probably had a 50% chance of finding it.  Because of those statistic and because he didn't want to put a 70 year old women in the germ infested hospital while there was corona virus circling, he recommended that I not do the surgery.  He assured me that the corona virus was not an infection that would go to my brain, but if he did do the surgery and I caught the virus things would be bad.  He also suggested the maybe the quarantine I was observing would help me self heal and keep me from getting any worrisome infections.  And so, here I am at home, so glad I didn't have to go through that.  

I sent out some emails yesterday, but didn't reach everyone.  When I noticed a reply on this site today, I realized that some of you were waiting to hear how I was doing.  I'm sorry if this a repeat, but I do want everyone who has been so supportive of me to know that I'm good!  The layer of fear and stress dropped away on the trip home.  I was so happy to be in my bed last night, giving my fist bump to Bob when we said goodnight.  We're hunkered away, hoping the world starts making some sense to us, and praying that all of the people we know and love are safe doing the same.

Thank you for being there for us.  Your love and support hold us up everyday.
Sending love, protective prayers and gratitude,
Marlene & Bob
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