Mark’s Story

Site created on October 27, 2017

In late August of 2017 Mark started having various digestive complaints. Mainly, he got heartburn every time he ate and had a tightness in his stomach and chest. And by early September, we realized his stomach was swelling. He was treated  for parasites 4 times but nothing helped. When our good friend and colleague Beth R. got back from an extended absence, we spent most of the morning talking through the whole problem because she is our team's medical advisor. She was mystified by Mark's abdominal swelling and recommended that we travel the 7 hours to see a doctor. On October 17th we left.  The next day, we saw Dr. Aly G. After a thorough examination, he ordered a whole battery of tests. Two days later we got the diagnosis: Non-Hodgkin's Lymphoma. Needless to say, that hit us pretty hard. Dr. Guindo wisely kept the rest of his instructions short and simple. He said, "The next thing you need to do is get on an airplane and go home, without wasting time."


 Evacuated With A LOT of Help from our friends!

Once we had a diagnosis and realized we needed to be evacuated, one of God’s unique provisions was the fact that longtime friends and colleagues  Nathan and Becky K. “just happened” to be at the same guesthouse we were staying in.  Uniquely gifted for the management of the logistics of a medical evacuation, (and with previous experience) they stepped  into the role of “evacuation coordinators”.  They communicated  for us, purchased for us, researched for us, THOUGHT for us! Since they are also supported by a church in Rochester, Minnesota, they knew whom to contact to find us housing, transportation and to set up an appointment at Mayo clinic.  And when they went home they took our vehicle and the studio computer which had been a major concern at the outset.  We absolutely could not have gotten on that plane without them!

In addition, just as God sent the ravens to feed Elijah by the brook, he sent us Matthias and Tonja, German Bible translators, who kept us supplied with delicious and nutritious meals!  This was a significant part of the care Mark needed during our week there.

Meanwhile, our  teammates  held a special prayer meeting focusing on our situation.  Our colleague David H. went to our house repeatedly to retrieve things we needed for the trip to the U.S, (warm coats and several months’ worth of prescription meds!) and got them to us. Then the whole team spent part of an afternoon working through an extensive list of tasks needed to close down our house.  Our hearts just ache with love when we think of these dear ones!

Many others, especially our colleagues who minister at our headquarters  worked behind the scenes to guide us through the evacuation process, help us interface with the insurance, etc.  And friends and strangers from many different corners WERE PRAYING!

The Evacuation You Prayed For

 In answer to your prayers, our evacuation insurance DID pay for BOTH of us to fly business class, enabling Mark to elevate his swelling feet and actually sleep on one of the flights!

 The Istanbul  airport's business class lounge felt like a taste of the bounty of heaven! The copious choices of FREE food and drink enabled us to find something Mark could eat!

We made our connection in Chicago…just barely.  Due to the delays of claiming our bags, taking them through customs, and needing to get our third boarding passes, we literally had to run for our gate!  And we’d never have made it if it hadn’t been for an angel named Jack who pushed Mark’s wheelchair and knew EXACTLY where we needed to go!  PRAY for Jack to come to know the God who used him in our lives that night in Chicago.

We arrived in Rochester to the very welcome sight of Autumn Ridge Church’s  missions pastor, Woody Roland. Good news: two of our three bags DID make the tight connection at Chicago! Bad news: the bag that was missing had Mark’s medical records from Bamako. (Keep reading for “the rest of the story”)

Wednesday morning we went to the clinic in time to get blood drawn and still be on time for our 9:30 appointment with Dr. Thomas Witzig.  Dr. Witzig, a hematologist, is not only a long-time member of Autumn Ridge Church (ARC), but a well-recognized authority on lymphoma! (This information came from Pastor Woody.)  Normally, we would have been put on a waiting list to see him, but Dr. Witzig and his team tinkered with his schedule and found a two-hour (!) segment of time when he could see us.  In God’s providence, it didn’t work quite as smoothly as he had hoped, and we had about a two-and-a-half hour wait to see him.  But that gave time for the third suitcase to arrive with the medical records from Bamako!  Thank you Pastor Woody for delivering it to us at the clinic!

Medical Summary….

After a long interview and examination, Dr. Witzig said that though some symptoms fit the lymphoma diagnosis others, like the fluid retention in Mark’s abdomen, were not readily explainable.   

Before we left his office his staff had scheduled Mark for a paracentesis (drawing some of the excess fluid from his abdomen for analysis and to enable Mark to be more comfortable eating) and a lymph node biopsy and bone marrow collection.   

Newest Update

Journal entry by Rae Wilson

We got back yesterday from an easy Mayo Clinic trip sprinkling five appointments over three days.  Well, at least we thought it would be easy before we got to the last appointment.

The PET scan was on Wednesday afternoon.  Mark had blood drawn on Thursday morning, then we met with Darci Z from hematology for the scan results. 

The results were decidedly mixed.   The tumor currently clinging to the outside of Mark’s left kidney has gotten smaller since the last scan in January.  Yay!  However, the tumor on the right kidney SEEMS to have grown slightly.   That’s not what we hoped for!

Darci said we should go ahead with the Epcor treatment on Friday.  Dr. Witzig and Emily Brigham were both out of the office for the week.  Darci said she would consult with them when they are back next week to see if they want to make any changes in the game plan.

So Friday morning Mark got his Epcor injection.  Then there was a dermatology appointment scheduled.  It was listed as an “excision.”  But what were they planning to excise?

Back in March, the day before we left for Germany, Mark had had a dermatology exam.  In the process, the doctor found a suspicious lesion on his arm, so she biopsied it.  We got the results electronically about 10 days later, just before we returned to the U.S.

The message stated that the skin sample was positive for squamous cell carcinoma.  BUT there was no evidence of cancer in the margin surrounding the sample.  So, we thought that whole episode was closed. 

We were wrong.  On Friday the dermatologist (and the nurse) explained to us that the sample size taken in a biopsy is not really adequate to ensure that there are no more cancer cells in the surrounding tissue.  So they needed to remove deeper layers of skin from Mark’s arm to be sure that all of the cancer cells have been removed.  So this excision was actually minor surgery. 

Since Mark and I are both very eager to have all skin cancer eliminated from his arm, we were onboard almost immediately. The surgery took less than an hour.  We will check back in with dermatology the next time we’re at Mayo to have the external stitches removed.

Until then Mark is supposed to give his right hand and arm some time off.  No heavy lifting, no vacuuming, no dishwashing (he’s heartbroken : ), but, hey, he can still drive, so life is good!

Before we knew about the surgery yesterday, we signed up for a “meal packing party” today at church.  We packed tens of thousands of meals for a mission to Haiti.  Yes, Mark was there, and our team leader found him a job that he could do with his left hand.  God is kind!

Sorry to have been so slow in getting the PET results to you, but we are kind of glad we waited until after the excision, so we could share that as well.

Please pray for Mark to be rid of this skin cancer!   The sobering news from the dermatologist was that the many lymphoma treatments he has received puts him at a much higher risk for this type of skin cancer.  So, though this was his first brush with it, it is not likely to be his last, according to the doctor anyway.

Pray also that he won’t absentmindedly pick up something with his right (dominant) hand while it is still healing! 

Thanks so much for “listening” and praying!  God bless you all!

 

So thankful for your prayers,

Rae (and Mark)

 

 

 

 

 

 

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