Mark’s Story

Site created on May 24, 2023

Mark was diagnosed with Non-Hodgkins Lymphoblastic Lymphoma in 1985 when he was 26, married, working in Minneapolis,  and had a 3 year old son and baby daughter.  The survival rate with treatment was estimated to be about  50%.  He is here nearly 40 years later as a result of very aggressive treatment (thank you Dr. Caldwell).   Mark  endured nearly 3 years of weekly chemo and periodic radiation. There have been a few health consequences from the chemotherapy, the worst of which was heart damage.  The chemo drug used was later pulled off the market because of heart side affects.   For the past 10  years Mark’s heart damage has become more significant with reduced heart function.  Three years ago  a pacemaker and defibrillator were implanted.  In July of 2022, he had a right heart catheterization to diagnose and slow the rate of his heart failure.   Last September a device was implanted to share information with the medical team to stay on top of any body changes and  inform the need for medication adjustment.   Every procedure has breathed new life into Mark,  at some level, for a period of time.  Unfortunately some medications that are good for the heart are bad for the kidney and vice versa.   He was doctoring for some knee and back pain this spring, so  that may have masked his extreme fatigue.  On May 12th, he  went in for a second heart catheterization due to the  intensity of symptoms of heart failure.  Upon initial lab testing and  checking vitals, Mark's condition was identified as critical, and more severe than in July of 2022.  He was in cardiac shock.  In order to move forward and gain quality of life and longevity, the two options presented by the medical team at Abbott were a mechanical heart pump (LVAD) or a heart transplant.  He has been going through considerable testing to see if he is qualified for one of the two options.  Unfortunately, in the testing, renal cell carcinoma was identified.  The current plan is open heart surgery to implement the LVAD system.

Newest Update

Journal entry by Becky Forsberg

A final note from Mark

It was a very blessed Thanksgiving which we celebrated with family at my son David’s and his wife Rebecca’s home.  (Yes, we have two Rebecca Forsberg’s in the family).  Especially this Thanksgiving, there was so much to be grateful for. Thank you all for your parts in my journey!

I have slept at home for 64 nights compared to the previous 144 nights at Abbott Hospital.  Oh, it is so good to be in familiar surroundings with Becky and our pups, Coco and Teddy.

But I must begin with a story from Halloween.  At the front door, I leaned on my walker as I handed out candy to the steady stream of children.  One boy pointed at my walker with a quizzical look and asked “What’s that thing?”   My reply was “I just got out of the hospital from having heart surgery.”  After a pause, the boy exhaled with “Well, at least you’ve lived a long life”.  🤣.  I softly grumbled to myself “You may be right, but I still have many Halloweens ahead of me”.  

My home health care lasted 6 weeks so can check the box “done”.  Every week Becky also took me to multiple follow-up appointments at Abbott and referrals to other clinics.   It’s an involved process of loading and unloading walkers, curbside drop offs, and navigating on-line forms.  My sister Jodi is Becky’s #1 backup and daughter Bethany is on the care team too.

To the question of “how am I doing today?” I’m getting stronger and more agile every week.  I can “motor” using my walker and at times walk short distances with a cane, but only at home.  Next organized therapy will be cardiac rehabilitation at a to be determined date.  

It was a true pleasure to reread and once again enjoy the get well cards received.  A note in a card from Bethany hit home with me.  It was a quote by Mary Anne Radmacher, stating “Courage doesn’t always roar.  Sometimes courage is the quiet voice at the end of the day saying I will try again tomorrow.” That has been my mindset in taking things one day at a time and praying each day for the endurance and patience I need.  I am forever grateful for your support and positivity- they have really helped me!

Becky and I wish you blessed holidays and a Happy (and healthy) New Year!  

 

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