Marcella’s Story

Site created on May 25, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

On Monday May 21st 2018 Marcella Alania Aviles was born. She made her grand entrance at 6:01 PM weighing in at  6 lbs. 5.2 oz and measuring 16.75" long. From the beginning we knew that she was going to be loved by many and steal the heart of everyone she met. Soon after her birth, she was diagnosed with Congenital Heart Disease, with multiple heart abnormalities having been discovered in her first few short hours of life.

As parents, there are no words to describe how we felt, and no amount of time to prepare for this news would have been sufficient. However, we were aware from pregnancy that heart issues may arise, reason being - in utero, Marcella had a two vessel umbilical cord. Most babies' umbilical cords have three blood vessels: one vein, which brings nutrients from the placenta to baby, and two arteries that bring waste back to the placenta. But a two-vessel cord has just one vein and one artery, and can be linked to heart and kidney issues. In the womb, Marcella received fetal echo-cardiograms several times to view  the anatomy of her heart.  From the initial sonogram, it was determined there was a "left/right discrepancy" where the left ventricle was smaller in size than the right ventricle. Each echo was completed to allow the cardiologist, Dr. Holly Nadorlik, to rule out different factors which could have caused this left/right discrepancy. Dr. Nadorlik could not  view the aorta to make any determination in utero if there were abnormalities. We were aware that because of this, upon birth an echo would have to be done to see the full development of Marcella's heart. And after Marcella was born, was when her journey (and ours) began, which is what we would like to share.
Please continue on to our journal entries and gallery to view updates, pictures and leave support for us in the form of comments. We love you all and appreciate your support and encouragement during our journey.

Newest Update

Journal entry by Julie Aviles

Memorial Day, the day before Marcella's big day! While most families are planning cook outs and running to the store for last minute things, we were by our baby's side. Because we were not sure how recovery would be for Marcella, we decided the family did not need to visit after the surgery. Marcella was hooked up to different machines which were spitting out different vitals every hour and even us as parents were afraid to hold her in fear of messing something up. Also, we didn't want to disturb her from resting, which we felt was most important before her big day. 
People started visiting right before noon and we continued having visitors in short bursts throughout the entire day until 11pm or so. We got a lot of meals and goodies to last us in the hospital, since we were not quite sure how long we would be staying. Having all of the visitors was a great way for us to keep our minds busy so that we were not focusing on the surgery tomorrow, and instead we were able to enjoy our loved ones and our precious baby girl. 
Our pastors Gilbert & Eileen were able to visit us and bring peace and support to us through prayer and fellowship. It was amazing to have powerful words of encouragement that could refocus our mind in the right direction. Pastor Gilbert read Psalm 139 which is affirmation of God's omnipresence and reassures us that God is always watching over us. Even when we feel lost and "alone", confused and in doubt, the Lord knows the purpose of our journey and every step of it before it comes to pass.
Pastor Gilbert gave a beautiful prayer over Marcella that brought everyone in the room to tears. At the end of the prayer, Marcella let out a yelp, and we all took that as her version of "Amen"! Pastor Eileen shared with us an organization called Maryssa's Mission and put us in contact with Mitch Rivas. She shared with us part of his journey and said he may be able to help navigate us around the hospital as well as put us in touch with resources within the hospital that could help us during our stay. It was nice to know that there was someone who had been through this that we could relate to and could lean on for support because they too know the journey we are faced with. It is a unique journey, and it is hard to explain to anyone who is not knowledgeable about the heart and things specific to cardiac kiddos.
Through our church, House of Praise, family/friends and also Mitch's foundation many people were uniting in faith for a successful surgery for Marcella and a speedy recovery. We were feeling extremely blessed to be part of such a strong congregation of prayer warriors and we were faithful that the Lord had big plans for Marcella's life.

Psalm 139:7-14 New International Version (NIV)
 
7 Where can I go from your Spirit?
    Where can I flee from your presence?
8 If I go up to the heavens, you are there;
    if I make my bed in the depths, you are there.
9 If I rise on the wings of the dawn,
    if I settle on the far side of the sea,
10 even there your hand will guide me,
    your right hand will hold me fast.
11 If I say, “Surely the darkness will hide me
    and the light become night around me,”
12 even the darkness will not be dark to you;
    the night will shine like the day,
    for darkness is as light to you.
13 For you created my inmost being;
    you knit me together in my mother’s womb.
14 I praise you because I am fearfully and wonderfully made;
    your works are wonderful,
    I know that full well.
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