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Apr 28-May 04

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It has been awhile since I have updated on here.  Now that Max has had a few follow up appointments I thought I would fill you all in.


He has been seeing orthopedics and about 4 weeks ago was put in a harness due to hip dysplasia (dislocated hip).  He wore that harness full time for about 3 weeks in hopes that would help his hip go back into place but it did not. They switched him to a more rigid harness now that they think will do a much better job. He has been wearing that for about a week now and is doing great with it. The nice thing about this harness is that it comes off for diaper changes and baths, where the original one did not. After 6 weeks in this harness we will likely start casting his feet as well.


As far as his head and his hydrocephalus they will continue to monitor that. He is right on the verge of needing intervention with a shunt which is used to drain the fluid from his brain into his abdomen. So far we are good but the doctor thinks that we will need it eventually. 


Yesterday he had full urology testing and exams. His tests went well and his kidneys look great and he is peeing an pooping good on his own. It is something that has to be continued to be monitored since they can't fully tell until he is at toilet training age. 


He is eating so well and gaining weight and staying on his curve. He is such a happy little guy and loves to chat with us and smiles a lot. He is sleeping like a champ and typically only waking once to eat. 


Updates here will likely be few and far between but if there are any major changes we will keep you posted. But for now things are wonderful!

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