Hi Friends and Family!

Well, it’s been a minute (+ 5 months) since I last updated. Real life took over once physical therapy was done for Makenzie, and we’ve been going hard since. Football for Colton, my crazy season at work, gym for David, and workouts for Makenzie. She’s been doing 3 personal training workouts a week (no, not with David 😉) and 1 private volleyball session. We didn’t have her participate in school volleyball this year so she could focus hard with her trainers. But y’all, look at the picture below. This girl had her first club volleyball practice last night and I’m just amazed. She’s so strong and so close to being back where she was.

It’s hard to imagine that this time last year is when we first started to really take notice of Makenzie’s muscle symptoms. Her first doctor visit with her primary was 12/17/20 (also David’s birthday) when the world just stopped. We have come almost full circle since that time. FULL CIRCLE. It’s just amazing.

Infusions continue monthly but after her rheumatologist appointment last week, the doctor agreed we can stop the large doses of IV steroids (solumedrol) and do small IV doses of hydrocortisone and IVIG. The hydrocortisone helps counteract any side effects from the IVIG. She’s moving from monthly blood work to every other month and the doctor doesn’t want to see us for 3 months! So crazy!!

Thank you for following along with our journey and supporting us every step of the way. This path left its mark but what a recovery! We’ll of course be watching closely, and she will continue to get annoyed with me for asking her how she feels multiple times a day but that should eventually wear off…maybe.

For now, know we are counting every one of you in our blessings this year. We are still overwhelmed by the support that was poured out to us all. One of the hardest parts for me was to see how much you all loved us and to know that Jesus loves us so much more. I had one very long hysterical crying session with a friend in the gym one day attempting to fathom why you all jumped in and did what you did and how in the world could Jesus top that. I just don’t get it, thankfully I’m not meant to. But I’m forever grateful for my precious Jesus and every one of you.

Hug your loves ones for us and have a very Happy Thanksgiving!!