Journal entry by Adrienne Johnson —
We are home!!! Maija was finally able to take a shower, put on real (but still comfy) clothes, have some lunch and is now resting comfortably in bed! We have all her meds on a nice spreadsheet (more for me than her!) so she stays comfortable while she heals. She has a follow up visit in 5 days where she will have another xray to check her lungs (she still has some pockets of fluid which have not cleared yet), remove the stitches and check her other incisions. She will also have a holter monitor as she is still going in & out of junctional rhythm and has a pretty low heart rate. We are hoping these issues just clear on their own over time. Overall we really could not have had a better team of doctors, nurses, PAs, PTs, her whole surgical team, and really just everyone at Children’s Hospital. We are very lucky to have had such great care, which allowed her to progress at such an accelerated rate. We were told 7-14 days when we went for the pre op appt, for her to be out in 6 days is just amazing. We also could not have gotten through this without support from all of you, so for that we all thank you so much. Many blessings to all of you for a Merry Christmas, ours came early for sure. ❤️🙏😘
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