I have not posted in a while as we have had a very rough month. Madelynn’s counts have been very low and needing transfusions. We found out about 2 weeks ago that the chemotherapy is not working and we are out of options. We underwent a CT scan to get a better view of everything in her chest and it was not good. She has fluid around her lungs the tumor is taking up almost her entire left chest and is pressing on her heart and all her major airways on her neck. It is nothing short of remarkable how she is able to breathe and continue to be our Maddie girl.
We have focused on family time and wanted to keep this news to ourselves for a while. She is slowly deteriorating and it has been difficult to watch. Losing weight, increasing pain, more tired and pale has been an everyday thing we face. Of course we are all feeling defeated and we have told Michael and Allison who are struggling at times. We are remaining positive that our last days with our girl will be peaceful and that we are able to manage her pain and breathing. We were able to make it out to the zoo last week and we will always cherish moments like these.
“Trust in the Lord with all your heart And do not lean on your own understanding. In all your ways acknowledge Him, And He will make your paths straight.”
Proverbs 3:5-6
