Maddy’s Story

Site created on December 6, 2023

Hi! I’m Maddy! I’m 9 years old. In October of 2023 I had been having stomach aches that kept reoccurring, and my mom brought me to the doctor.

The doctor said I had a heart murmur and that she would refer us to cardiology, and thank goodness she did because I had an almost 2cm hole in my heart that needed to be repaired.

On January 30th I had open heart surgery to repair the hole in my heart and now I’m healing up!

Thanks for following along, your prayers and support during this time.

Newest Update

Journal entry by Kara Johnson

Yesterday Feb. 27th we had a visit with cardiology in Alaska- the cardiologist was out sick so we had a Telehealth visit today with the cardiologist up here to go over her echo and ekg. 

He doesn’t like what he’s seeing in the heart valves on both sides, and is going to send the reports over to MN Children’s and have them and the surgeon look over it. 

In the mean time he wants to start Maddy on a medication to help reduce her blood pressure, and we will need to have another echo done in 3-4 weeks to see if the valve regurgitation looks better.

Depending on what MN Children’s says we may have to change the plan  or keep it the same.

Keep her in your prayers! ❤️
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