Maddison “Madd’s”’s Story

Site created on November 28, 2018

So if you are reading this you love our little family and most importantly want to see how our baby girl is doing. We 
arrived in Los Angeles today and tomorrow (Wednesday) is her pre-op. The surgeon said it should only be about three hours so we will have some quality time with Maddison 
before her surgery  on Thursday  morning. 


As of right now, the surgery is set at 10am, Thursday..... but if for some reason a baby needs it first they will have to push back Maddison’s surgery for later.  As hard as it will be on our 
 family to do the surgery later in the day., our hearts will continue to pray for the sweet baby that took her spot and 
needed it more than our Maddison. We ask for prayers for all the families going through this incredibly hard time.!


Maddison, our sweet girl. Where do I even begin. She’s 
literally all smiles, excited to feel better and hasn’t shed one tear or even a speck of fear. She is literally our HERO. 
Mom and dad are hanging in there. Of course Daddy has a brave face for all of us, he is literally my rock and has more strength and courage in his tiny little finger than I do in my entire body.   As a mommy I’m an anxiety MESS. I just know that world will be off my shoulders when the surgeon comes out and says “the surgery was a success and you can go and see your baby”
So please PRAY PRAY PRAY PRAY for her! We will keep you updated every chance we get! Thanks so very much for the love and support ! 
Love, The Hinze Clan

Newest Update

Journal entry by Jenna Hinze

So I’ve had numerous text messages, phone calls and emails over the last few days. Again, we are sorry if we haven’t responded to all of you. Honestly, we are just trying to get back to our “normal”, get our laundry done, help Brooklyn with her homework, carpool, Morgan back to work.....ya know the crap we need to get done. 
So I am happy to share how amazing Maddison is doing, she truly is the STRONGEST little girl we know. Almost daily she receives a beautiful card, visit from friends and family and oh lord let’s not forget about all the presents! 
Madd’s is getting back into her routine, getting up alone, making her own breakfast aka protein bar, watching her cartoons! 
If you didn’t know her and saw her today for the first time you would have no idea what she had just endured last week.
So, one thing we were hoping for,  for her was that her migraines would have been related to her heart condition. We found almost immediately that that this was not going to be the case. In 4 days she had 3 excruciatingly painful ones, one which landed her and I making a bed by the toilet for hours. 
All in all, Morgan and I couldn’t be happier with Maddison’s recovery, she is just so amazing ❤️ 
I know I have said this time and time again on this update page but we CANNOT THANK YOU ALL ENOUGH FOR EVERYTHING. We truly believe in the power of prayer and without all of you by our side I’m not sure if Morgan and I could have dealt with it had we not had each and everyone of you.
Patients and caregivers love hearing from you; add a comment to show your support.
Help Maddison “Madd’s” Stay Connected to Family and Friends

A $25 donation powers a page like Maddison “Madd’s”'s for two weeks.

If you donate by May 12, your gift will be doubled, up to $10,000, thanks to a gift from Living Water Foundation.

Comments Hide comments

Show Your Support

See the Ways to Help page to get even more involved.

SVG_Icons_Back_To_Top
Top