Journal entry by Mackenzie Middleton —
Last night (Christmas Eve) they had baby on monitor all night and he behaved. Of course mom didn’t sleep much with all the monitors. The morning went fine. Mackenzie laid down to rest about 10am and her water broke again. She had a diagnosis of polyhydramnios so that’s why there was so much fluid. The OB doctor was rounding at The time and looked at the monitor then looked at Mackenzie and said “we are done, it’s time”. The OR, NICU team and staff were called to get prepared. Mackenzie had an emergency c section - baby was pulled from her and immediate assessment and line placements were done by the NICU team. He was placed on the ventilator and was ok for a couple minutes until he wasn’t. A chest xray did confirm the doctors suspicions of very little lung tissue. Obviously we need lungs to survive so they would just do what they could help save the baby.
Mackenzie had to Recover for 2 hours before she could head to the NICU. Once the two hours were up Tyler and her went to check on “baby Way”. His heart rate and oxygen levels have never been in a normal
Range. Another xray confirmed a collapsed
Lung. With how critical
His vitals were. We were told he may not tolerate/survive the procedure of a chest tube placement, but they wanted to give him a chance Knowing we did try and if it didn’t work we knew we gave him a shot.
He did tolerate the chest tube however his vitals did not improve. They had another specialist come in and talk to
Tyler and Mackenzie. He sat them down and said he’s never seen this before in his 30 years of practice, but he’s confident baby has a congenital
Condition called restrictive dermopathy. And no matter what they would do, he would not survive. It is a lethal condition. He recommended baby be placed on mama and then all lines and tubes would be disconnected and he can pass peacefully in his mammas arms. After Tyler and Mackenzie digested the news, that’s what they did.
Waylon Tyler Middleton entered this world around 11:40am at 2 pounds 4 ounces. (they don’t have all the exact stats yet) and left peacefully at 6:29pm. 🕊️
Please respect Tyler and Mackenzie’s privacy during this horrible time.
Please respect Tyler and Mackenzie’s privacy during this horrible time.
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