Welcome to Lysa’s CaringBridge Site
Sign In to Show Your SupportMarch Week One
Well this was the first week since last June that I had no doctor's appointments! What a sense of freedom.
March Week Two
Back to appointments! I got my first of the two Covid 19 Vaccines! My oncologist said that with my lymphocytes so low, that I may not get full immunity, but some was better than none!
March Week Three
Chapel Hill - Thank you Erica for making the trip again! The day began with a high resolution CT scan at 8:30. The results show no cancer, only scar tissue!!!!!!!! The downside of the results is that I do have permanent lung and heart damage from the pneumonitis and pericarditis from the immunotherapy. How much that will impact my life in the future is unknown at this time. I need to be completely off of the steroids and more stable before they will commit to an answer.
Pulmonary Function Test followed at 9:15. My lung volume has increased each month by about 100cc. My diffusion results were lower this time, but the doctor assured me that this number was not very reliable. I was able to walk further without oxygen and kept my O2 saturation >90.
I went to the lab next and had some blood drawn. Results show no increase in lymphocytes yet. I am still anemic with low hemoglobin. However my liver and kidney function are returning to normal.
Doctor Rivera's appointment was overall very positive. She made a statement that really shook me to my core. "When I met you in January, I didn't even know if you were going to recover." I had been so focused on getting better, that I hadn't considered the severity of my illness or the graveness of the alternative. She is please with the trajectory of my recovery!
March Week Four
SECU Comprehensive Cancer Center -
Labs were about the same. It was nice to have a massage and the therapy appointment was very helpful.
End Note for Today
The steroids are still making me uncomfortable (but necessary for breathing). The thrush, heart rate, swelling, etc. sucks. A few more months and hopefully I can put them behind me.
Personally, I am grateful to be better. I am still frustrated with the pace. Most days I am very positive!
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