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Apr 28-May 04

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Today has been a long day.  So many things have happened,  At noon today Mom's nurse Jenn called me to tell me Mom was not doing good today.  She was fighting the ventilator and gasping for air in between the ventilators breaths.  She was breathing at a rate of 40 breaths per min and her heart rate was up in the 130's.  The needed to calm her down and in order to do that they had to give her a paralytic medicine to paralyze her so that her lungs would calm down.  They also had to put a arterial line in her arm to be able to get blood gas analysis as needed and not have to keep poking her and to monitor her blood pressure directly and in real time.  She was also running a fever of 103. 

I went and picked up Dad and took him with me up to the hospital and by then the paralytic was working and her breathing was being controlled by the ventilator.  Her heart rate was still in the 130's and has stayed there all day.  Even now, it will not come down.  

I got to talk to her Hematologist/Oncology NP he said it was an Acute Leukemia that we are dealing with, will find out the exact kind tonight or tomorrow,  and with all her other Diseases it is going to make everything more difficult.  Then I saw her Infectious Disease Dr. he said all her cultures have been coming back negative so he was going to take her off most of her antibiotics.  He was going to leave 1 still because of the fever.   He does not think she ever even had Pneumonia.  He thinks this has all been a result of the Leukemia.   

I called to check on Mom a little while ago, I talked to her nurse and she said the results for her Leukemia test were back. It is AML (Acute Myeloid Leukemia).  Her Hematologist/Oncology Dr. was in to see Mom and the nurse talked to him.  He stopped the Chemo that he was giving her and at this point is not going to start any other Chemo.  At this point she is very unstable and giving her Chemo would only make things worse.  He is trying to figure out the next best course of action to take.  With everything else going on they are having a hard time figuring out what is causing what exactly.  They started her on a blood pressure medicine because her blood pressure was too low. And her white cell blood count has doubled since this afternoon.  They don't know if she is trying to fight off an infection of if its form the leukemia.  Her Infectious disease Dr. will be back in tomorrow morning to see if she needs to be put back on more antibiotics. 

I will be going up there tomorrow morning with my kids so they can see her.  I will update more tomorrow.

PLEASE PLEASE PLEASE PRAY FOR MY MOM!!!! 

Please pray for my Dad too. He is having a really hard time with all this and is getting so lonely.  I am so worried about him too.  

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