Luke’s Story

Site created on April 24, 2022

Luke has a Congenital Heart Defect (CHD) called Hypoplastic Left Heart Syndrome (HLHS).

Stage 1: Norwood 8 days old on July 13th
Stage 2: Glenn 5 months old on Dec. 7th
Stage 3: Fontan around age 3

Newest Update

Journal entry by Monika Nedved

Cath procedure went well! They found 4 collaterals within his left lung and coiled them. They also changed the VAD setting from 70 to 85 to help with pressures. Hoping he can be still and rest for 6 hours (flat time). They had a difficult time stopping him from bleeding where they went in on the neck due to being on bival. Hoping this helps make him feel a little better as we continue to wait for the perfect heart. ♥️ 
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