Hi Everyone,  We have received Lucas's official diagnosis but by no means do we think it will limit him.  God is good and performs miracles everyday.  We are also seeing Lucas make positive progressions towards milestones, so we are optimistic.  Lucas was diagnosed with Pontocerebellar Hypoplasia (PCH) Type 2A, which is an extremely rare disorder.  We are working 6 hours a day with therapy and saw via zoom, the top brain rehab doctor in the world, Dr. Melillo on Friday.  We will be implementing his recommendations and praying his optimism and our hard work pays off.  We will fly to NYC for intensive therapy in August with Dr. Melillo.   Thank you for all your prayers and support.  Lucas needs them and we do too!!!! This was an unexpected blow for sure but we are back on our feet and ready to fight.   Love you all!!! Jenni