London’s Story

Site created on May 2, 2022


* Just a note that this site is free to us.  The donations they ask for are to keep the website running in general, not London's specifically! 

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope. 

Jeremy and I have been working hard since November on the mental health  of our youngest, London. (Formerly Brynlie)  Jeremy and I have both been taking time so London was never left alone and also to be with them through two hospitalizations and intensive therapy.  

London was most recently diagnosed with Harm OCD in addition to Major Depressive Disorder and Anxiety.  
What is Harm OCD (https://centerforanxietydisorders.com/what-is-harm-ocd/#:~:text=Harm%20OCD%20is%20a%20subset,t%20trust%20their%20own%20mind.)
These overwhelming thoughts made London afraid of themself all the time.  London felt like they didn't deserve to live. 

I am writing this from bedside in the PICU at Nationwide.  London overdosed  Saturday the 23rd and seizures and heart damage led to cardiac arrest for 7 minutes.  London has since been on life support machines and having tremors and neuro storming.  The MRI shows damage on both the outside and inside of the brain.   

We don't know if or when London will ever truly wake up. We don't know if they will be able to communicate or control their body. We do know the if London does wake up they will be very different.  We do know  that we will love them in whatever way that looks.  We are mourning the life London should have had,  and  also trying to remain hopeful that there will be some kind happiness here for them in the future. 

We have felt great love and support from all of you.   We started out this journey trying to protect London's privacy, but we are past that now. London, Braden, Jeremy and I need you and whatever form of positive energy you can send.   We see many of your messages and texts  and even if we can't respond they give us strength in the particularly bad moments.   


Right now we are in a holding pattern until nuero storming is under control.  Updates may not be daily, but we will update when we can or when we have changes.  We hope that this centralized location will keep us from missing some of you when we send out text updates.  Send all your love to London.  They need it. 

Newest Update

Journal entry by Carrie Hunsicker

Last night I had a conversation with London about sharing something amazing they wrote.  It is an essay for college admission.  Yes.  You read that right.  An essay...for College admission.  I asked I could share it here for hope.  They agreed.  

Before I share it, I need to back up a bit.  Last time we updated, London had given permission to share about treatments in the interest of informing others of what is out there.  We were looking at two different treatments last time I wrote. We did do both of them.  

Transcranial Magnetic Stimulation  (TMS) is brief magnetic pulses that target certain areas of the brain.  We struggled hard finding a  place for this, I nearly lost my mind with one place who wouldn't do a treatment for London because they had previously attempted suicide.  They wouldn't do the treatment for treatment resistant depression because of the risk they might attempt, again.  This was one of the most frustrating things I have ever dealt with.  They were here in Columbus.  Instead, we ended up traveling to Scenic City Nuerotherapy in Chattanooga, TN.  They were amazing.  We chose a newer protocol called iTBS (intermittent Theta Burst Stimulation) which is an aggressive five day protocol with 10 treatments a day.  We stayed in a hotel near the center and spent 10 hours a day at the location.  This yields faster results and because we were traveling, it helped with not having to stay for 6 weeks.  This was not covered by insurance, but I found a grant that helped.   I do believe this helped London. 

London also started taking Lithium, and I believe it is currently saving their life.  After starting the low dose we had London's levels checked and they were still (even on a low dose) under "normal" levels.  Once London's levels where in the therapeutic range we began to see big changes.   We have had to adjust once, but this has been life-changing.  

London turns 18 in a few months and will continue to receive support from us and from the board of disabilities through adulthood due to do some of the permanent damage to their brain, AND, and that is a big and, they are seeing a future now. 

Last night,  they brought us their essay for their application to CCAD.  It is beautiful and I want everyone to see.  Jeremy and I couldn't make it through the first paragraph without tears.  Happy tears, proud tears, relieved tears, and tears from fear if I am being honest.  I know things change and that there will be more highs and lows coming our way.  We are strong enough for it.  London is strong enough for it.  I think after reading their words, you'll agree ...

London Hunsicker

Personal Essay

6 January, 2024

Overcoming  Challenges

Life is different for every individual. People can have similar experiences throughout their time, but what makes us unique from one another is how we choose to handle ourselves with the challenges we face daily. I dealt with a hurdle that was nearly too tall. The ground for me is uneven now that I attempted to take the easy way around it. Everything changes.

I woke up with nothing. I could barely even open my eyes or move, for that matter. It was slow, but I finally understood what people were saying. They kept it together for me, but I know now that they cried when they saw me awake. I had been in a coma for 11 days, with little hope of waking. Throughout my time in rehab, I got my voice back. It was quiet, raspy, and slow. Then, I relearned other necessary functions. I was like a newborn baby that vaguely remembered some things about functioning in their past life. I was happy for that moment because my memories of the bad things were gone. Once I had the strength, I left the hospital.

I resumed school at the Delaware Area Career Center. I was rapidly relearning art and impressed many people with my progression. I made a group of friends and brought a service dog to school. Some people were a bit put off by me because of the way I held myself with my brain damage, but I was still not concerned by others' thoughts while recovering. I made it through the digital design program to my senior year.

Senior year, I got my art skills back. I found interest in photography and storyboarding. I made an infographic resume, did mock interviews to prepare for future jobs, did commissions for holiday pet drawings or tattoos, and got better at talking to people. It is a bit difficult still because of my memory loss issues, but I have been able to handle my anxiety.

From my experience, I have grown. I know that facing this at a young age taught me that I can make my life worth it by using change as a teacher. If you do not embrace that life is never the same between us, you lose the opportunities to get over the hurdle safely. We don't get to start out perfect.

 

 

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