If I had written this yesterday, it would have been a much different story. Yesterday we were given the results from Ian’s scans from Monday and were told that there is a suspicious area on one of his ribs, that we should expect to return to Cincinnati soon for a biopsy. Today, the Tumor Board (multidiscipline team of experts) met and looked very carefully at Ian’s scans and decided that the initial report for his CT scan was exaggerated and that there is not a significant finding, that Ian is still in remission! This area will still need to be monitored, so Ian will have more scans in 3 months as we’ve been doing for a while now… but what a beautiful gift to receive today! Also a very scary reminder of how vulnerable our situation is. This has been an emotionally exhausting and sleepless week for us. We are so grateful to be home together and to be able to push some of these thoughts away. 

I’m also really pleased to share how Ian has been progressing with his feeding therapy. He has moved on to different textures, different flavors, and is much more intrinsically motivated with his eating. He is working with a fantastic occupational therapist and he generally just seems more confident with his own eating skills. There is still room for progress but he is in a good place right now.

He will be turning 4 in just a few weeks- I can’t believe it! We are just so incredibly fortunate to have this sweet boy in our lives.