Lisa’s Story

Site created on June 28, 2019

I am a 40 yr old mother to 6 amazing children and I’ve been married for 16 yrs.  I struggle with many health conditions and many of them are autoimmune.  I was diagnosed with celiac disease at the young age of 2.  I also have autoimmune hepatitis and almost had to have a liver transplant in May of 2016.  With medication my liver numbers are stable atm.  I have an autoimmune blood clotting disorder called antiphospholipid Antibody Syndrome which caused us to lose our 5th child about halfway through my pregnancy.  I suffer with asthma, mixed Connective tissue disease, vitamin D deficiency, osteopenia, osteoarthritis, seizures, high bp, tachycardia, gastroparesis and my most recent diagnosis was hypogammaglobulinemia in 2018.  I even developed sepsis from this and was hospitalized for 3 months.  I currently get IVIG every 4 weeks to lower my risks of infection.  Right now I’m using a wheelchair as the sepsis put me in a very weakened state.  The gastroparesis is also greatly affecting my life.  I just received my 2nd Botox through endoscopy to help relieve symptoms but the dr said I already have scarring from the first treatment.  They may not do anymore Botox so either g-poem or gastric pacemaker is the next step.  Thank you for following my journey.

Newest Update

June 28, 2019

Journal entry by Lisa Charbonneau —

Today marks two days after my 2nd endoscopy with Botox procedure for the gastroparesis.  I’m not feeling nauseous or vomiting which is great but I am worried I am coming down with another infection😏. Fever is up, bloody nose and throat is so sore I can hardly chew, swallow or talk.  Will probably have to get checked out.
Read More of the journal titled "June 28, 2019"
Patients and caregivers love hearing from you; add a comment to show your support.
Help Lisa Stay Connected to Family and Friends

A $25 donation to CaringBridge powers a site like Lisa's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?

Leave a comment of support for Lisa

Did you know? A quick comment, no matter the situation (positive or negative), can boost morale by 28.2%.

Comments Hide comments

Read More Journal Entries

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Requests
Go to Ways to Help
SVG_Icons_Back_To_Top
Top