Linnea is now a year old! Crazy right!? So much has happened this last year and this caring bridge journal has been a wonderful way to share updates on Linnea. I’ve been being asked a lot of questions lately and I figured it’s time to make another update.

Linnea is now hopefully all done with surgeries. Now, it will just be a lot of learning how to care for her. She is healing well and she is happy and healthy. That is what matters most.

With her condition, things will constantly change and we will be learning a lot. These are things to help her live a normal life and she will not be slowed down due to her condition.

That being said, I will no longer be posting her journey for all to read. From this point on, her journey will consist of very private and personal things that could last her whole life. People do not need to know exactly what she needs to do behind closed doors and now that we are at a point where we will start learning what those things are, I will not be giving details. I will respect her privacy as some of these things may follow her into adulthood. Thank you all for understanding.

I also want to thank you all for following Linnea’s story and sending all the positive thoughts and prayers. She is still a rockstar and she is going to do amazing things.