Lillian’s Story

Site created on August 23, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated with what’s going on with our little Lilly in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

Newest Update

Journal entry by Lindsey Olson

Wel it a been a while!  So I’ll start off by saying HELLO and I hope everyone is doing well!!!  Lilly has been a very busy girl lately, she actually just did a brief stint down at Hotel Masonic.  She had been battling an infection at her G/J tube site and we tried to fix it at home with oral antibiotics, but it just kept getting worse so we checked in late Tuesday night so that they could get her on IV antibiotics.  Less than 24 hours on 2 different IV antibiotics and it was already 100x’s better!!! We were there for 5 days and she loved every minute of having mom all to herself!  We were even able to score a few sessions with occupational therapy, physical therapy and speech!  We introduced her to apple cinnamon veggie straws and yogurt melts and they were a hit!!!  She also practiced standing and getting up on all fours which was a little struggle because her belly is still pretty tender from her infection. All in all she did really well!  She was her normal happy smiley self in the hospital and was so excited to see her old nurses,  She usually had an audience at some point during the day of different  nurses at the door commenting how big she’s gotten☺️ 

Besides the bit of redness, a little drainage and the nasty smell🤢 she is on the mend and we are glad to be home again! 6 days of a different oral antibiotic and she should be as good as new!!!  

Right now she is 9 months old and enjoys being outside (she takes her best/longest naps outside) and hanging with sissy!  Eva is such a big help with everything, I see a future nurse for her!  

We hope everyone is having a great summer so far!!!

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