Lillian Evelyn Rose’s Story

Site created on September 8, 2018

Lillian is our beautiful, smart 2 year old who has gone through the ringer of over 10 surgeries of her heart and abdomen. This site was created to give everyone updates on her status and medical journey. Feel free to leave comments and ask questions on the site and I will be able to make one post for all the friends and family that would like updates. Thank you all for your support we are always hoping for the best. If I get a chance I will put a back story from her previous surgeries and medicalet journey. We love all of you!

Newest Update

Journal entry by JAMIE DELARWELLE

They released us yesterday at 7pm! took long due to the holiday, and teaching staff starting their residencies. Lillian is still struggling with her cold but is without oxygen and doing good. Continuing nebulizer. Working on walking and regaining her strength and keeping a close eye on her input of food and water and output from stoma and urine. She's loving being home and not being bothered with vitals and labs!!

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