Journal entry by Katie Lewis —
Lillian had her 6month post surgery appointment yesterday in Missoula. Her left ventricle is shrinking (or reverse grinching) which is great news. Her heart is returning to a normal size. The left atrium is harder to get a solid measurement on, but it was also a little smaller. Her leaking around the repaired valve is minimal. The size of her heart is really going to help the valve work better because it isn't as stretched out.
We asked about COVID-19 risks. The rare mutations they've seen effecting the cardiac system in children aren't prevalent in congenital heart patients. Dr. Sticka said that there was no reason to assume that Lil would be in a higher risk category at this point, but that we should continue to practice all safety precautions.
No restrictions on any activities for Lillian. She is aiming for at least 30 minutes of cardio workouts for 5 days a week. It should be easy to reach that. Shes already back to social distance roller derby practice twice/week.
We did ask the dreaded question "will she have to have heart surgery again?" The short answer is that it's likely when she's much older. She still may be growing and her heart could continue to shift in size over the next few years. If the leak becomes worse, she'll have to look at another repairitive surgery down the road.
Overall great news yesterday! We're home safe and sound and looking forward to the 6 months we'll have before the next appointment.
We asked about COVID-19 risks. The rare mutations they've seen effecting the cardiac system in children aren't prevalent in congenital heart patients. Dr. Sticka said that there was no reason to assume that Lil would be in a higher risk category at this point, but that we should continue to practice all safety precautions.
No restrictions on any activities for Lillian. She is aiming for at least 30 minutes of cardio workouts for 5 days a week. It should be easy to reach that. Shes already back to social distance roller derby practice twice/week.
We did ask the dreaded question "will she have to have heart surgery again?" The short answer is that it's likely when she's much older. She still may be growing and her heart could continue to shift in size over the next few years. If the leak becomes worse, she'll have to look at another repairitive surgery down the road.
Overall great news yesterday! We're home safe and sound and looking forward to the 6 months we'll have before the next appointment.
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