Lilia’s Story

Site created on May 31, 2019

Welcome to Lilia's site.  To those of you wondering how we found out that Lilia was sick, here is the backstory we wish to share. Beginning of May, Lilia was limping quite a bit. She had fallen so we figured it was due to that. The problem didn’t seem to be improving so we took her for a massage which seemed to help but only temporarily. We wondered in between about bladder infection, so she was put onto medication for that, but her bloodwork for that came back clear. So we stopped the medication. Back to the massage therapist to try to correct her bladder issues. Her health seemed to be getting worse, and she was more tired and grumpy than usual. So on Wednesday, May 29, we took her to see the doctor again. The Dr. sent us for bloodwork and X-rays right away.  The next morning, May 30, the  Dr called and said we needed to go back in and redo one of the blood tests. The X-ray showed a fracture on the fibula of her left leg.  Her blood work showed she was severely anemic which was all the Dr told us over the phone. But we needed to go to emergency as soon as possible. So Eric rushed home while I packed some bags as she’d told us we’d need to be going to a hospital that had a Pediatrician( most likely Vancouver).  We went to emergency (in Salmon Arm) and met with the Dr who gave us the news that our Daughter Lilia had leukaemia! Dad and Mom as well as Craig and Theresa came to be with us there. Also my grandparents and Rogan came and Lilia was so excited to see Rogan! While we were all busy crying, Lilia couldn’t figure out what was wrong and made it her job to keep handing out kleenex to us all!   Lilia got a blood transfusion at the Hospital. At 6:30, Mom, Dad, Janae, and I left to drive to Vancouver. Lilia and Eric waited with Craig’s until the air ambulance came to transfer Lilia at 9:30. When we arrived at the emergency at Vancouver  Children’s Hospital we had a late night meeting with several of the oncologists on call for debriefing. Got up to our room at 4!  For Lilias go fund me please follow this link: https://www.gofundme.com/supporting-lilia-nicole039s-journey

Newest Update

Journal entry by Kaitlyn Wiebe

Hello friends,
Some of you have been wondering what we are doing in this week of waiting. We are resting and learning how to live a low-key life. Somehow our days always fill up. I have my sewing machine here, so I've been sewing a bit, working on Christmas cards, making a macrame... Lilia's been begging every day to do projects, so we happily oblige. She's feeling good. Happy. Silly. We won't complain. Even just the basic things here take so much longer than they would at home. We walk down 2 long flights of stairs....to the kitchen, the laundry room, every time we need new towels. We walk just about everywhere we want to go. Yesterday I took the sky train by myself to Winners. That was a first for me. This journey seems to be mostly about patience and accepting what happens. In the evenings, we've been calling in to listen to church at home. It's the closest we can come to being there.  The sun shines here today, so we are at the playground. Lilia didn't want to come, but once we're here, she loves it if course! 

Just a little bit of the daily things. Thanks for all the love. Keep praying. 

Kaitlyn
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