I’ve been meaning to post since we got back from the Cities, but life just keeps chugging on. We’ve been back for a week and a half now. Lilah’s therapist tested her at the end of the program and she made some significant gains. We are so proud of her! I only wish we could go on a little longer to see more gains, but the program is only 4 weeks and they need to make way for more kiddos this summer. It was also quite an upheaval of our lives and it felt really good to be home. However, we are scheduled to come back again next summer. The constraint program really helped Lilah make big gains on muscles strengthening that is needed to make finer motor movements in her left arm and wrist. She gained more control of her arm and is able to rotate her wrist more. All of which are needed precursors to finer tuned movements. She has also gained some better pincer grasp movements, making it easier to pick up and remain holding objects. Our goals now are to sustain the gains she’s made and build upon them. It is really easy for Lilah to go back to ignoring her lefty, so we are cuing her often to use it as a helper in all of her activities. She understands this and is very good about correcting what she is doing when we tell her.
When we got home from the program, we drove straight to a campground near our home and spend a few days unwinding. We had planned to stay until Monday, but were so eager to get home we left on Sunday. We went into Bismarck on the 4th and enjoyed our tradition of getting DQ ice cream and watching the fireworks display that the Capitol puts on.
Lilah will be going to therapy three times a week during the summer to keep up the momentum of her hard work. She also had a routine eye appointment last week. Her prescription was bumped up a little, which is expected in growing kids with glasses. The good news is her eye turn has reduced by 50 percent. It wasn’t noticeable to me before, so now she doing even better! Lilah has a few more appointments coming up in the next 2 months that will bring us back to the Cities a few more times. She has a OT recheck, PT recheck, rehab Dr recheck and Neuropsychology recheck. She’s a busy girl and keeps us on our toes!
