I love this hospital and all that it has done for my family. I'm slightly crabby at a few individual employees, but know that I recognize I'm cranky and that one person doesn't speak for an organization.
Liam had an ultrasound of his thyroid neck yesterday here. I was quite aware that they were measuring many nodules as I've watched enough of these by now. We went to the endocrine clinic next where they manage his growth hormone and thyroid hormones. This visit was quite unpleasant. It was stated that they don't feel he is taking his medicine. I will be the first to admit (and Liam did too) that there have been some days that he has missed a dose. However, he is taking them. This took a further negative turn but I'm not looking to vent about it here. I believe we have resolved it. His thyroid levels are very poor and need to change. We all agree on that. He started a new dose today. They also said they don't think he'll grown anymore than his 5'4" current height. They then ordered a bone age test to verify this. We don't have the results of this yet.
He saw physical therapy and they thought he was doing ok. There are some exercises they'd like him to do but he doesn't have to go back to PT at home for awhile so that was great.
Today we went to see the thyroid cancer doctor. First a physician's assistant came in. We don't know her, she doesn't routinely care for us or have any rapport with us. She immediately looked very seriously at Liam and said "Liam, you have a problem" My heart sank. She went on to say she didn't think he was taking his meds. Phew. I told her we were awaiting the ultrasound results and she had scared me as I thought she was referring to that. She said that the ultrasound results were poor because he wasn't taking his meds. She even went on to say that 'thyroid cancer is rarely fatal, but when it is' it's due to patients not managing it well and it getting out of hand.
I am still not ok with this and I have waited several hours to process it. Again, love this hospital. Just not loving today.
She was followed up by the doctor. This doctor was also new to us, apparently ours moved to Sweden. This doctor also said he wasn't taking his meds. This was my limit. I pulled out the bottle of pills that showed we HAD been filling it (apparently it didn't register that it had been filled in their records) and said we keep being told he's not taking it when he is. I'm not sure she believed me yet. She is unsure of whether she wants to do surgery to remove all of the nodules or not. Apparently there are multiple nodules that shouldn't be there and she wants to discuss it with the team on Thursday to make the decision. I kind of lean towards TAKE THEM OUT OF HIS BODY but also dislike surgeries for Liam.
We then went to psychology. It was Liam's appointment but by this time I could have used a couch to lay on and a person to make me ok with things! We discussed all of this and his schooling. This was just a regular check up that they do here. He fooled her yet again into thinking he's a normal teenaged boy ;)
This was all followed up by a photo shoot here. He will be using these as some of his senior pictures. When it was done I asked the photographer to take one of Liam and I, I have placed it here. The rest will be edited and sent to me down the road.
I am not sure when we will here the decision on surgery etc... We're flying home tonight.