Journal
Liam was released from the hospital yesterday and we got home a little after 4 in the afternoon. I just wish it was under better circumstances. It breaks my heart to have to share that while we were in the hospital Liam's condition began deteriorating rapidly, what was months has now become days. The cancer is growing out of control and he has fluid in his lungs making it difficult for him to breath. Initially we were supposed to stay until Monday so that Liam could go to his radiation simulation appointment, however we have decided not to go forward with radiation. For him to have radiation he would have to be under sedation and unfortunately with his condition being what it is currently there is a very high risk of him ending up on a ventilator and we felt like the risk versus benefit just wasn't worth taking the chance. We don't want him spending his last days on a ventilator and I couldn't handle being put in the position of having to make the decision to take him off. Even if we had been able to go forward with radiation it wouldn't have been able to treat everything. Chemo would also only buy us a day or two at best, realistically it would probably do nothing. At this point we have him at home with the help of Hospice nurses, he's on several pain medication to keep him comfortable as well as oxygen and medications to help him breathe. I can't begin to tell you how devastating it is to have so little time left with him. We're just praying he will make it through the weekend so he can celebrate his 9th birthday with his friends and family. Our families will be arriving in the early part of this week to spend some time with him. We are doing our best to treasure every minute we have together.
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