Liam’s Story

Site created on August 7, 2018

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.

On June 28th, we were notified our 1-year old son, Liam, had been diagnosed with Langerhans Cell Histiocytosis (LCH). Liam’s LCH treatment plan consists of six weekly chemotherapy treatments with daily prednisone tapered after week 4. After the six weeks, Liam will undergo another MRI which will determine if we need to complete another six weeks of weekly chemo treatments during Course 2 or move on to Continuation Treatment with chemotherapy and prednisone taking place every third week until completion of the 12-month treatment plan. Once Liam has been "cured", he will continue to be monitored throughout his lifetime as it is common for those with LCH to be diagnosed with secondary cancers. He will have MRI Scans every 1-2 years for 10 years and based on the findings, our plan will be developed as we go. It is also common for LCH to move throughout the body, but we're hopeful he will ultimately be cured!




Newest Update

Journal entry by Patricia Halvorson

Today was Liam's 12-month follow-up MRI scan since all treatment was discontinued. 

Liam had an MRI in June 2019, MRI and Ultrasound in September 2019, along with another Ultrasound of the neck area in December 2019. He was supposed to have an Ultrasound in March 2020, but due to COVID-19, no evidence of concern in any of the recent scans, followed by the fact that he is eating and growing appropriately, we got the okay to hold off on traveling until yesterday. 

We wore our "Superhero" masks (what Liam calls our COVID masks) to the same-day Peds Unit (Sanford's main medical location) for his 8:00 AM appointment. 

Liam was taken down for his MRI at 9:15 AM and all ordered labwork was completed while he was under anesthesia during the scan. He is in the 21st percentile for weight at 29.2 lbs and 10th percentile for height at 36 3/8 inches. He has grown over 5 inches from the age of 2 yrs to 3 yrs!

We were discharged from Sanford around 12 Noon and met with Dr. Anim down at Roger Maris around 3:00 PM.

Dr. Anim reviewed all labwork and scan results with us and reassured us that the MRI shows continued remission. Liam still has residual shotty nodes on the imaging which are reactive and not concerning for LCH. He does not have any long term side effects from treatment. Dr. Anim made the decission to discontinue MRI imaging and perform surveillance with clinical examinations and ultrasounds of the neck every 4 months for the next year.

Liam was able to get up-to-date on all vaccinations in January 2020 and will continue to receive all immunizations as they are due.

Liam's next appointment will be in October of 2020.

On December 17, 2019, Liam and Lane became big brothers to their sister Summer. She is the sunshine our lives needed and we feel so incredibly grateful to be the parents of our three children!
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