Journal
So this will probably be the last update that we do, at least for a little while.
We went to Levi's follow-up post-surgical appointment this past Wednesday; Dr. Armstrong said that he looked well and was doing much better than he had anticipated. He said his wounds were healing up nicely and he had a little more color to him. We talked a little about what now, and he said that Levi was doing so well that he didn't think he 'needed' to come in after a month to do another follow-up unless we thought it was necessary. After a few questions we were on our way again.
Then Friday we had his gastroenterology appointment. We met with Dr. Hektner and we went over what sort of lifestyle changes we may need to make now that we know that it's a Crohn's diagnosis. She said that since they cut out all of the active Crohn's during surgery and Levi wasn't presenting with problems, we wouldn't really need to make any diet changes unless we noticed a certain food causing flare-ups. She said also since he wasn't showing symptoms he wouldn't have to start on any medication at this time. We did find out that Crohn's can present "outside" symptoms such as joint swelling and rashes (basically symptoms that occur on the 'outside' of the body instead of on the 'inside'). We found out that this could be why his ankle has been swelling so bad; she took a look at it and noticed the swelling. We will contact her if it doesn't get better and then think about doing meds if it hasn't improved; other than that, Levi isn't showing any active signs right now! We will have to do a follow-up colonoscopy in a couple of months and possibly some labs in a few weeks to look at Crohn's biomarkers, but we are basically out of the woods and he's doing so so well.
Again we want to say thank you to everyone who has supported us during this difficult time and made it easier for us. We couldn't have gotten through this without such supportive family and friends.
Samantha & Levi
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