2022 was a rough year for us. We got to go to Florida in December and celebrate all that God had brought us through. When we were waiting for Levi to have surgery the Lord gave me a vision of my children playing on the beach - happy, healthy, and whole. That same night, I told Noah we need to book a trip to go celebrate at the end of this. We did that and the trip was crazy! We drove to the Florida Keys because Levi was unable to fly due to the surgery being aborted and doing radiation instead. We did not know that was going to happen when we booked the flights but God did. Satan threw everything at us to stop this trip from happening like being rejected to take a rental car, to kids throwing up the whole way, and even a water main breaking at our VRBO! 😂 But we refused to let him steal our joy and we kept moving toward this promise God had given me!! As I drove across the Florida Georgia line, I began to weep. I cried for an hour and half straight just thanking God and praising Him for His faithfulness and blessing in how everything worked out. Gabby asked me if I was crying and I just said “I am crying happy tears baby, I cannot keep them in anymore.” That was such a healing thing for my momma heart. And then the very next day I saw my babies playing on a beach - happy, healthy, and whole!!  Praise be the Lord! 

I know there may be challenges ahead and that this is not over yet.  But I also know My God is faithful! He is in control! And I can trust Him! Levi will have a scan in 5 months to see how the radiation is going. The doctor said we can expect to see a few things. Maybe no change, maybe some swelling, or maybe some break down of the AVM already. This is a 3 year process and we are praying for a fast break down of the AVM! But we are ok with whatever God’s will is! 

Through this process Levi has decided he feels he is being called to be a pastor. He has stuck with that and I know it can change, he is only 9. But I too feel like God has a special call on Levi’s life. Even if it is just to share his story with others, that would be enough! Praying that God would bring him those opportunities in this time of waiting. 

Noah 3D printed Dr. V a brain lamp that lights up and glows in the dark. It is pretty cool! He was able to give it to him today. I will post some pictures for you. 

We will continually share Levi and ours story and keep people updated as best we can. Though now, we have 5 months of letting him be a normal 9 year old boy. Thank you Lord for that blessing! 

Love and thanks to everyone that has prayed for us during this journey! ❤️

Jenn Demerly