Len’s Story

Site created on April 6, 2023

 [Len died on March 14, 2024, and his service will be at First United Methodist in Fort Worth on Saturday, May 25 at 1 pm with a reception following. We would be delighted to have you with us in-person or by livestream. I have added a new note here to "Len's Story." ]

 

“The eternal now, playing at a venue near you. Don’t miss it.”


When we hung up the phone after hearing terrible news about Len’s health last August, I turned to him and said, “Well, that’s not good.” Len smiled, “The eternal now, playing at a venue near you. Don’t miss it.”

 

When Len’s lung cancer was found in August, we started posting on CaringBridge and continued through his 7 remaining months. One of the biggest themes over those 215 days was being present to all of life (I mean ALL) in the present moment where, by God’s grace, the past and future come together – the eternal now.

 

The CaringBridge Journal posts, which you can find here, chronicle not only Len’s decline in health, but, more important, the lessons that we were learning and the things that gave us hope and strength. Len and I have long admired Arthur Frank, who wrote in The Wounded Storyteller about the pedagogy of suffering. “The pedagogy of suffering means that one who suffers has something to teach . . . and thus has something to give.”  I learned a lot from Len and his challenges. Len and I both reflected on those lessons on CaringBridge, and I am continuing that practice after his death. Len talked again and again about a handful of themes in his last years and, for that matter, across his 53 years as a cancer survivor, certainly the 44 years that I loved him.  Len’s memorial service on Saturday, May 25 will center around some of Len’s enduring lessons.  

 

If you have been following these posts, you know something about Len’s amazing, bad ass death. The short version is that Len died quickly in his beach chair with our kids and me at his side and their partners nearby, all on the beautiful beach in Destin, Florida.   (I am unaccountably pleased - and know that Len would be too - that his death certificate lists as location – “beach"!) The longer version of this story is found in the CaringBridge journal posts from March 16 and 18.  




Below, in italics, is a portion of the original version of the opening story that explained Len's health problems.  I have not edited it but have left it as we wrote it in August 2023, with an addendum in brackets. 





I want to thank everyone again for all of the care over the last year or two – for prayers, meals brought by the house, dog sitting during the hospitalizations, kind words, cards, and texts, etc.   We loved visits from our kids, siblings, chiblings (aka nieces and nephews and their kids), cousins, and friends.  And we loved getting all of the messages through CaringBridge and Facebook. When Len was alive he read every message, often multiple times, and I continue to read them all.  Thank you!





Peace, 
Beka

 

 [From August 2023] 


The short and simple version of Len’s health saga is that the massive radiation and chemo that cured Len of childhood cancer (Hodgkin's Lymphoma) in the early 1970s at St. Jude Children's Hospital, is now, 52 good years later, triggering late side-effects and diseases in various systems of his body, including two new malignancies.  [Len adds “The early experience of cancer also brought many gifts. Since the early 1970s I began learning through those difficult experiences that life is a gift, and that gratitude and wonder are deep blessings that I could discover along the way. That has been my perspective on life for most of my 52 years – through those early experiences of cancer and whatever we are facing now."]

The details are complicated, because so many systems of Len’s body are battered that it is hard to know what is causing what and, in some cases, to get clear diagnoses. That said, he does have a lot of diagnoses – lung disease, heart disease, kidney disease, bladder disease, neurological disease, artery disease, blood and bone marrow disease, etc. And within each of these larger conditions are many other diagnoses. He sees 30 something specialists, all at UT (University of Texas) Southwestern, mostly in Dallas, for dozens of problems. The partial list on his UTSW MyChart lists 57 “health conditions," including the testicular cancer he had in 2019.  Len was released in August from his 8th hospitalization in a little more than a year and had gone to over 100 outpatient visits in that time.  And since then, the appointments, tests, and treatments keep piling up . I am usually right there with Len, because I manage his care, as well as trying, with less success, to manage Len himself! 

And now we add two new cancers to the list of diagnoses.  In mid-July Len was diagnosed with a non-Hodgkin lymphoma - Waldenstroms Macroglubulinemia. A PET scan later showed a rapidly growing mass in his right lung and lots of new nodules on lymph nodes in his chest and neck. That and his worsening cough, breathing difficulties, exhaustion, and other problems, sent him to the hospital in mid-August where they did tests that eventually revealed lung adenocarcinoma in his lung and lymph nodes that turned out to be Stage 3b and too far spread for either surgery or radiation.  Because of all the previous chemo and his various health problems, he is taking a lighter than normal dose of palliative chemotherapy plus immunotherapy in the hope that the treatments will control and slow down the growth of the cancer.  

 

[Addendum from April 2024.  The treatments helped to shrink the cancer, but they also exacerbated some of Len’s many other health problems, especially with his heart.]



Len’s body may be having trouble, but his spirit is strong, and he is enjoying life. The week he was diagnosed with a non-Hodgkin lymphoma, we made calls to family members to let them know. For Len, the big news that week was not the new cancer; it was the owls. He has been talking with a large male barred owl almost nightly for more than a year and sometimes with the female owl as well. Earlier in the week of the cancer diagnosis, for the first time, four owls appeared in the back woods at dusk when Len began his owl calling. The two owls had brought their young to see Len. That is much more exciting than cancer and probably more conducive to living in the eternal now.

Len writes, “When I am feeling well enough, I am having a wonderful time. I love hearing people’s stories – whether in the hospital or in the many Zoom groups I am a part of. When I feel that connection with people, it helps us realize more that we are in sacred space and living in the present moment. The eternal now is playing in venues all around you.  Don’t miss it!”  Len,  August 2023 








Newest Update

Journal entry by Rebekah Miles Delony

A few days after Len’s death, educator and author Parker Palmer posted about Len on his Facebook page and included Mary Oliver’s poem "When Death Comes." Palmer asks us to consider this powerful question, “When our last day arrives, what do we want to be able to say about our lives?” 

 

Here is Parker Palmer's post followed by the Oliver poem. 

 

On Thursday, a friend of mine died. Len’s health had been precarious for most of his life, but he never ceased looking for ways to support and encourage others.

 

On Friday, when a young interviewer asked me the ancient question, “What is the purpose of life?,” I found myself channeling my friend’s spirit: “Life is a gift, pure and simple. Its purpose is more life, which means living in a way that passes the gift along to others.”

 

Here’s Mary Oliver’s poem about death, which asks not only how we want to die but how we want to live. When our last day arrives, what do we want to be able to say about our lives?

 

Memo to Self: Live a life of curiosity and exploration, the kind that keeps opening your mind and heart. Do your best to look upon everyone as a brother or sister, and never underestimate the courage it takes some people just to wake up and walk into the day.

 

Don’t ask to be saved, ask to be spent, spent on the common good: life itself is the best investment you can make. Don’t be a mere tourist, be a lover of life. Your reach will always be limited, but there are a thousand ways to take the world’s wounds and wonders into your arms.

 

When Death Comes, Mary Oliver

 

When death comes
like the hungry bear in autumn;
when death comes and takes all the bright coins from his purse

to buy me, and snaps the purse shut;
when death comes
like the measle-pox;

when death comes
like an iceberg between the shoulder blades,

I want to step through the door full of curiosity, wondering:
what is it going to be like, that cottage of darkness?

And therefore I look upon everything
as a brotherhood and a sisterhood,
and I look upon time as no more than an idea,
and I consider eternity as another possibility,

and I think of each life as a flower, as common
as a field daisy, and as singular,

and each name a comfortable music in the mouth,
tending, as all music does, toward silence,

and each body a lion of courage, and something
precious to the earth.

When it's over, I want to say: all my life
I was a bride married to amazement.
I was the bridegroom, taking the world into my arms.

When it's over, I don't want to wonder
if I have made my life something particular, and real.
I don't want to find myself sighing and frightened,
or full of argument.

I don't want to end up simply having visited this world.

**********************

Note from Beka:   Parker's rendition of Len's possible answer to questions about the meaning of life seems true to Len (and to Parker!) “Life is a gift, pure and simple. Its purpose is more life, which means living in a way that passes the gift along to others.”  Len spent a lot of his time over his last months - and all the months before - thinking about how he could live in a way that would pass that gift of life along to others.

Several friends replied on Parker’s post, noting how often Len talked about Parker and his work.(Over the years, when the kids would make up “Dad bingo,” Parker Palmer’s name was always included, along with other people and things Len mentioned a lot – e.g., mindfulness, Dan Siegel, pre-frontal cortex, etc.)  Cindy Johnson mentioned in the comments to Parker’s post, that it “would have meant the world to Len.” That is true.  Len loved to hear from Parker.  And he loved to hear from all of you – the Facebook and CaringBridge comments, the texts, and the cards have been a joy.  Thank you.  

We are doing okay as we find our way through grief and learn to live with this new normal.  As I note in the addition to "Len's Story",  I plan to keep posting and am hoping to get back on a once a week schedule.  

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