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May 05-11

This Week

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So much can happen in a year and so much to be grateful for.   I attached some pictures from 2013, 2016 and today.   A true Princess of Power if I have ever seen one.  
Yesterday was an appointment with a program called New Kids (cue favorite nkotb song) that works with kids to help them figure out what eating and exercise plan works best for their bodies.    Leah qualified for the program because her cholesterol levels were not the greatest and some of her other labs were in a sort of “Purgatory”. They were not within normal range but we’re not to the point where medication was needed.   
We have made a lot of changes at home and her lab results and numbers truly show all the hard work that she has done.   Her cholesterol is back to a normal range  and she is no longer trending toward being prediabetic.  We will continue to the new kids program going forward. 
Today Leah had a little bit more of a lineup.   Little woman could not eat or drink anything for her first two appointments this morning.  Let me tell you - she gets hangry real quick.  I found an old granola bar left my backpack from Peru and debated if I should try to sneak it but decided not to play with that fire. 
First was a liver ultrasound to monitor the nodules that gave gray last year.   Leahs fnh (focal nodular hyperplasia) is unchanged from last year - we like unchanged! 
The labs she had drawn have all come back......drum roll please..... normal range! 
Last was Next Steps Survivorship Clinic to meet and review things.   Got some good info regarding COVID and school.  We discussed risk, safety and what would be best for our household.  Leah will returning to regular classroom learning along with Nel and Jeffrey this fall.   She is actually excited about starting 6th grade. 
A spine xray did need to be added in due to some lower back pain Leah has been having the last few months.   We decided to try a nerve pain medication to help her be able to be more comfortable doing activities.   First consistent med she will be on since 2017ish - not too shabby. 
So, overall a great couple days! 




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