Kristen’s Story

Site created on November 19, 2019

Well, it’s the big C! When I checked myself into the emergency room on November 11 for trouble breathing, I thought I was having an asthma attack. As it turns out, I have lymphoma in my right lung and the tumor has collapsed the entire middle lobe (central third) of my lung. The bronchi (main airway) in that lung is completely closed off after the upper lobe. My team of doctors also believe there is pneumonia behind the tumor.

The pathology results show that it is a low grade, B-cell, nodal marginal zone lymphoma, which is a rare, slow-growing cancer. Thankfully, it is still centralized in my lung and hasn’t spread anywhere else. My bone marrow testing was clear, and the PET scan showed minimal areas of concern outside the mass in my right lung. Because of this, the treatment plan at this time is just radiation, which I’ll begin Monday! This is all amazing news! I mean, if you have cancer : )

In case you’re concerned, I am extremely positive about all of this. I consider it a gift that I checked myself into the hospital, which allowed people to find this before the impact to my body, my quality of life and life expectancy were really significant. If you know me, you know this is just another brightly colored patch on the technicolor quilt of my life.

Thank you for stopping by. Thank you for caring enough to interrupt the wonderful things in your life to share your support. Your prayers, good vibes and love are felt and have buoyed me as I’ve worked to process this.

I. Will. Crush. This.

Newest Update

Journal entry by Kristen Jordan

Today is the 2-year anniversary of my diagnosis. It was a Wednesday. Two days after I had checked myself into the ER for breathing trouble. That week I had a chest x-ray, CT scan, bronchoscopy, thoracic surgery biopsy and bone marrow biopsy. After 8 days in the hospital, I went home with vases of flowers and new physical and mental scars.

The first thing my oncologist said to me about my full diagnosis was “I have good news!” because my rare type of lymphoma was centralized and there was a very good chance it was curable. Things didn’t quite work out that way. 

Two years later, I’m still fighting. I’m down to 1 2/3 lungs, I’ve got 7 new scars, 3 new radiation tattoos, and a port. My lung surgery in May was succsssful, but cancer remains in both lungs. I’m getting immunotherapy infusions every other month and will continue that for two more years. 

My last CT scan in Sept. had some good news and some concerning news. I don’t know where things will go in the future, but I’ve learned to enjoy my life as it is and not get wrapped up in where I believe my path needs to lead. 

My joy comes from the people around me, the gifts that the universe bestows upon me and the amazing things that my body can do. I delight everyday in the tremendous blessing that is my son.  He brings so much light to my life. I’m thankful for every day that I get to spend with him.
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