Monday, June 18th, 2018 - Klaus did it again - his lung mets continue to be stable! There is nothing to be found in his head or neck.
Last year was a big leap of faith - moving out to yearly reviews consider the mets in his lungs. Both our oncologist Dr. Clark and our Naturopathic doctor - Dr. Rao - are working to slowly cut back on his use of supplements. He's down to 5 supplements now and it would be great to see if we could reduce the list even more without doing any harm to his strong immune system.
Next appointment will be in one year unless some lumps or bumps show up unexpectedly.
We are working on making him a new prosthetic dental bridge with a team here in Boulder since he cracked it a bit ago.
Below is a picture taken at the hospital today. A non-profit called "BITE ME CANCER" shared a care bag with some gifts specific for teenagers. it was a very nice surprise.
Last week Klaus was at Camp Wapiyapi and was a "JC" Junior Consular in training and tomorrow he heads off to Camp Courage. Both are camps in Colorado for kids and their siblings dealing with childhood cancer. We have been so grateful for the support of these amazing communities of volunteers and families who just get it. At these camps our kiddo's are so grateful to have their own community of others who really understand their journey. Each year Klaus gets farther away from his beginnings - the brighter the light he shares with others for hope during their darkness.
Other special news:
Big brother Calvin graduated from Boulder High School this year and will be attending Columbia University in the fall. Studying Biochemistry. At this time he is thinking of a premed track. In order to attend Columbia he's needed to apply for many scholarships in order to make the financial responsibilities possible. He's been working so hard on all his applications. One of the scholarships he applied to was the North Western Mutual Siblings of Childhood Cancer Scholarship. It made us all so proud when they provided him with a 2 year scholarship! We are so grateful for the generosity of this special community to help him along and support his dreams. As Calvin has filled out all his school and scholarship applications - I've had the opportunity to read his words, and get a deeper understanding of how this experience as a sibling has impacted him so profoundly. He has taken the darkness and molded those experiences into something that motivates and inspires himself and others. This year he also organized at Boulder High School the 1st Annual St. Baldrick's Head Shaving Event. In less then 6 weeks - he motivated his close friends and over 100 kids to participate, volunteer and shave their heads for awareness. Together this community raised over $45,000 for childhood cancer research. Imagine what each of these kiddo's will do in the future for the cause of their beliefs?
We could not be more proud or grateful for both Klaus and Calvin and how they use this experience in a positive way for others. Each time I hear our news, I feel grateful. But at the same time the darkness is present too. With a heavy heart, today as Klaus and I were walking back to the office from his CT and MRI - in front of us was a police escort walking a man down the hallway with a tiny blue gingham coffin in his arms. I can't but imagine the hardship others are feeling the same time we are feeling our joy and relief. That is why we will never drift away from this community - it is always part of our lives - the good and the dark. There is always a way we can contribute to make a difference for others, our chosen path is helping others and helping to inspire funding for research and cures.
THANK YOU ALL for all the support over the years for our family and also all the donations for all the walks, climbs, head shavings we have participated in. Together we will continue to make a difference.
With a grateful hearts,
xoox Tracy, Timothy, Calvin and of course - Klaus Dragon Heiman