Yesterday was a good day! Not only was it World Down Syndrome Day, a day we get to celebrate Jameson and all our friends across the country and increase awareness and acceptance for Down syndrome, but it was also the day of labs and scans to see if the radiation/chemo I have undergone the past 6 months was successful at keeping me clear of any spread or reoccurance.  I had both a CT of my Chest/Abd/Pelvis and MRI of my Rt. Femur (the tumor/surgical site). I am happy to report that the results of both the CT and MRI are clear and continue to show no evidence of metastatic disease or recurrence at the tumor site. I can now say that I am officially done with treatment.  I do not need to do any maintenance or oral chemotherapy that is prescribed for some cancers. I will have to repeat the CT and MRI every 6 months for the next 3 years.  The thing about sarcoma is it is such a rare cancer, that there is not a lot of information out there to give specific follow-up treatment plans. But Dr. Solomon is encouraged by the fact that there was no evidence of spread at the time of diagnosis and also that the size of tumor was much smaller than most sarcomas are when they are found.  So my prognosis is very good, but it is something that will just need routine scanning. I can handle that!

So I may not be posting a whole lot anymore as things will start to go back to normal. I want to thank you all for the prayers, words of encouragement, and support provided in so many ways by so many. It is an experience that has changed our family and shows us not take anything for granted. Our family will be forever grateful and know that someday if the same support is needed by someone else in our "village", we can and will offer the same generosity to that individual/family that was shown to us.