Journal entry by Kimberly Holmes —
Super quick update to say that my CA125 is 13! So it has gone down 5 points! I’m relieved as I will admit that I think this whole first year will be nerve wracking until I feel more confident cancer wise. I am still healing from surgery, and I’m having all of these mysterious pains related to either the maintenance medications or the sudden loss of all of my hormones, or the nerve damage from surgery, it’s hard to really know what’s causing the feelings I’m having, and a minor pain can feel like a lot more when you don’t know what is causing it for sure. I’m not just having minor pains either. I’m sometimes having pain so debilitating, I have trouble walking or bending. The maintenance meds and what my body is experiencing has really jacked up my quality of life. The past week, maybe the past two weeks, I’ve been in bed most of the day, every day. The second round of lighter steroids have started to help some, but it’s not the same as the first time. I don’t know the answers. I know I’ve been kind of a bummer for those of you who have been inspired by me, but I’ll get there. I’m not giving up. Being bed bound, or at best, homebound, has been a struggle though, and I am working on it.
Patients and caregivers love hearing from you; add a comment to show your support.
Help Kimberly Stay Connected to Family and Friends
A $25 donation to CaringBridge powers a site like Kimberly's for two weeks. Will you make a gift to help ensure that this site stays online for them and for you?