Kelly’s Story

Site created on July 11, 2022

In June, I began experiencing some minor abdominal cramping/pain and felt a lump in my belly. Something just didn't seem right, and when the pain increased I went to the doctor at Grand Itasca where they quickly scheduled a CT scan (on 6/29) to check into the issue further. The CT results showed a mass on my colon and spots on my liver. The Grand Itasca care team went above and beyond and not only got me in as quickly as possible for a colonoscopy (performed on July 6th), but they had already used their magic powers to fast-track me into the Mayo Clinic system before the colonoscopy was even performed. (THANK YOU, Dr. Soular and Dr. Owens, for being amazing advocates for me!). On July 7th, pathology reports confirmed that the mass on my colon is indeed cancerous and that I'm going to need surgery ASAP. 


I have been scheduled to begin my Mayo Clinic adventure on July 20th with another CT scan and additional testing. I will meet with my surgeons and oncologist on July 21st. The assumption is that surgery will happen at the end of that week and that I will be at Mayo for 7-10 days during this stay, but we will keep everyone updated here as my care team finalizes the treatment plan. We are unsure if Chemo or Radiation will be part of that plan. 


My 4 amazing kiddos know what's going on and they are doing great. Their dad, Scott, has been an amazing support and will be taking them in his care full time until I am back home and able to again share that responsibility. My family (Mom, Meghan, and Tommy) will be with me at Mayo and will help keep you all updated here as things move along. And my dad is getting the prayer army ready to fight up in heaven. 


I'm ready to fight like hell, and I know that all your good vibes, prayers, and positive juju will help give me strength for what's ahead.  We will soldier on, just like my dad taught us. 

Love,
Kelly



Newest Update

Journal entry by Kelly Kabotoff

Hello All, 

I wanted to update you all to let you know that I'm doing GREAT 5 weeks post-surgery. This part of the journey has been so much better than expected. My plumbing is working and I'm not in pain. All good things. I go back to Mayo next week for scans and will update you all with the good news after that appointment (see the manifesting I did there?) but in the meantime, I thought you might like the recent post from my blog. Thank you as always and keep on keeping on. XXOO - Kelly


FROM MY BLOG  The Dimmer Switch:

525,600 Minutes

While I’m not a fan of math, I am a huge fan of musical theater, and I have always loved the song “Seasons of Love” from Rent. Lately, I can’t seem to get it out of my head. For those who don’t know the song, or who need a refresher, here’s how it starts…


525,600 minutes, 525,000 moments so dear.
525,600 minutes – how do you measure, measure a year?
In daylights, in sunsets, in midnights, in cups of coffee.
In inches, in miles, in laughter, in strife.
In 525,600 minutes – how do you measure a year in the life?
How about love? How about love? How
about love? Measure in love.
Seasons of love.

 

On July 5th I got 43 staples removed from my abdomen. The last pieces of ‘medical intervention’ that remained in my body after a year of lots of…well…intervention. And on July 6th, I woke up knowing it was 1 year exactly from my diagnosis of Stage 4 Colon Cancer. 365 days of living as a cancer patient. 525,600 minutes of my life that had been defined by this horrible disease. But I also woke up knowing that it wasn’t the horrible that defined the year, it was, as the song says, the love.

While I may not like math, we all have to go there when needed. When I was first diagnosed, I didn’t think I’d live to see my kids all graduate from high school. I did the math and 12 years seemed like a long time to fight. It seemed, statistically, unlikely. I didn’t share this part of my grieving process with those around me. I didn’t want anyone else to know I was going there. I had to be positive. I had to be strong. I had to set the tone. And I also had to allow myself to go there – even if it was just for a moment – so that I could grieve that possibility and prepare myself for what was ahead of me.

Luckily, I quickly readjusted and found the faith to believe that I was going to be okay. It wasn’t just faith, actually. It was a decision. I actively decided that I was going to be okay. That I was going to see my kids grow up and graduate. Heck, I even decided I was going to see them get married and have their own kids. I was going to be okay. And that was what guided me through the hardest journey of my life.

And I am okay. But I am forever changed by those 525,600 minutes.

How do I measure a year? In hugs. In snuggles. In prayers. In laughter. In tears. In triumphs. Even in fears. (I was singing during that part, for those of you that now have the song in your head) But out of tune (which is the only way I sing) here’s what I’m choosing to measure…

I AM choosing to measure, and bear witness to, what my body has gone through.

  • 1 Colon Resection Surgery
  • 1 Colostomy Creation (not sure what to call it!)
  • 12 rounds of Chemotherapy
  • 1 Liver Resection Surgery
  • 1 Colostomy Reversal
  • Countless Blood Draws
  • Countless CTs and MRIs
  • 3 ER Visits
  • Countless Side Effects of everything – some of which could be permanent (neuropathy, chemo brain, weight loss and gain, anxiety and depression, nerve damage, etc)

Lesson there – DAMN, AM I STRONG!

But here’s the real count that matters over the last year…

  • The PRAYERS and ‘good vibes’ sent my way from people near and far, even those I have yet to meet. (…and gifts, cards, etc. So grateful and humbled). It was palpable.
  • The LOVE shown to my kids (who, by the way, are stronger and sassier than ever. Damn are they rockstars!). Thanks to all who held them a little closer this year.
  • The CARE shown to me by the hundreds of medical professionals during my journey.
  • The TIME I had with my mom. My siblings. My partner, Dan. Sure, most of it was during or after chemo or surgery, when I wasn’t at my best. But damn was it good.
  • The PEACE I found with myself and with the universe.
  • The STRENGTH I found in myself and saw in everyone around me.
  • The KINDNESS shown from strangers.
  • The BEAUTY in life.

And all of them, while countless, add up to a beautiful year in my life.

I’m okay. But I’m also still healing. I actually think I’m entering into the hardest mental part of this experience. The re-entry. But I’m here. And that is sure as hell better than the alternative.

Keep shining,

Kelly

FOLLOW MY BLOG FOR MORE UPDATES - thedimmerswitchblog.com 

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