Keil’s Story

Site created on March 24, 2009

I was diagnosed with Ewing's Sarcoma on March 24, 2009. I'm a fighter and I don't give up.

No more chemo for me! Woot woot and wahoo!
On the road to recovery now. Ready. Set. Go!

When I took my physical before school, I was told I had tendonitis in my right arm. When I began to get a bump, I assumed it was just a part of the tendonitis because it still had the same ache. Well, over time, it has grown quite a bit so I went to the pedatrician on Monday, March 17th. None of the doctor's knew what was on my arm, so they performed a cat scan to see what it was. The results were that it appeared to be something minor, something benign.


I went back Tuesday, March 18th for an MRI to get a better picture of what was in my arm. The results came back, and I had a tumor in the soft tissue of my right arm. I am going to Minneapolis on Sunday for an official biopsy and from there, most likely treatment. I don't know when I'll be home or anything that will happen later. It all seems just too big, too real for it to be true. But the proof is on my arm, where the pain keeps me up at night and the bump grows larger. I cried a lot, so I hope I have cried it all out. It’s going to be tough for me and I don't know when it's going to be easy again.

Newest Update

Journal entry by Keil Oberlander

Hello friends, family, and supporters:

Much has happened since my last post one year ago. I am currently a sophomore (second year) at Brown University in Providence, Rhode Island, which is 1,600 miles from home. I don't even know where to begin since life has been a whirlwind ever since those days long ago when I was confined to a hospital bed or the couch in my living room. I guess I will just spit out anything that comes to mind, since that's usually what I just do.

I am just wrapping up my third semester at Brown. I have not declared my concentration (what we call majors) yet, but I will be declaring Ethnic Studies, which is the study of race and ethnicity and intersecting identities (such as sexual orientation, class, ability, religion, etc.) geared more specifically in the United States. I will be focusing on indigenous peoples in North America. I am currently learning two languages: Spanish and German. I took Arabic for a semester, but boy-oh-boy was that one a toughie. I didn't agree with the department's ideology, so I do intend to pick Arabic up sometime in the next 80 or so years. There's always time! (And if not, I'll still be happy with what I'm doing now.) I am currently looking for some $$$ to help me afford the beginning of the learning of my tribal language, Lakota. Hopefully, I will be up at Standing Rock reservation in June for three weeks at a Lakota language seminar--fingers crossed!

I am supah busy at Brown with activism and jobs that intertwine. I am a Minority Peer Counselor and a Native American Heritage Series Programmer. I also participate in the University's main resource for students of color (called the Third World Center) as a member of its Student Advisory Board. Additionally, I am one of the leaders of the student group Native Americans at Brown (NAB). I do a lot in the Third World Center (TWC) community, so there's always something to do for me :) 

I love what I do here at Brown. Something unique to Brown found in very few places in both the US and the world is that we have an open curriculum, meaning the only requirements we have are those that our intended concentrations demand. There are no generals, which thankfully for me means NO MO MATH. Phew. This semester was particularly difficult for me because I became much more passionate about my activism and extracurricular activity rather than my coursework, which was a problem in that... I am a college student. So I had to learn to fix that quickly. One thing that has not changed is that I am continuously learning from my mistakes and preparing for the future. I'm going to get this thing called life down eventually. (Again, somewhere in the 80-something years I'm counting on.)

I have met the most wonderful, inspiring, passionate, caring, unique, like-minded, powerful, empathetic, and intelligent people here at Brown (NOT to say people I have previously met are not, but I just really want to compliment these people for whom I am immensely grateful for). I still find myself in some deep holes occasionally, but I always have someone I can turn to and that is something I learned does not happen everywhere. People I meet everyday, here and there, inspire me and I am glad that I'm from the Midwest bcuz I really do enjoy talking to strangers who become acquaintances and then friends. PEOPLE ARE JUST TOO BEAUTIFUL AND AWESOME. That's another thing that I've learned: while there are some ugly people out there, there are some jaw-dropping beautiful (internally and externally) out there that who can care for us and give us someone to care for in return. 

I am really just living my dream and following my heart. Everything I do here I do because I still remember there is no time to waste in this world. I am still returning to Minneapolis every 3-4 months for check-ups (and I will for five years I believe), and I am frightened for how the results may come back for about ten seconds. Then I remember, that worrying over what may already be or come to be is really demanding of one's energy and spirit. And this is something I have come to understand only just recently that I think links back to my experience with cancer and undergoing chemo and surgery: life is too short to worry and stress about what is. As an alternative, we must just "do" knowing that we have done all that we can do and that our genuine interest and effort has a considerable power to it. I am currently in the smack-dab middle of finals (I finish in 2 days!), and while I could be crying myself to sleep or dumbly pounding my head against the desk, I honestly feel amazing. I feel inspired, energized, and just content. I have a seventeen page paper on the sociology of occupation due in less than 24 hours and a five-page paper on the process I underwent while creating a narrative film. What I'm saying is, I got things to do and so does everyone else but we as people only have so much energy to spend when in such high-intensity moments. So what I want you, my reader for whom I am grateful, to take from this yadda-yadda-yadda is that you can relax. You can relax and enjoy life even when it's not so wonderful, when you cannot control the situation (which is terrifying in itself), and when you only have the option of pushing through that which you are doing. Be hopeful, know where you want to be, and trudge through that heavy snow to get to that delicious hot drink (I'll take a creamy hot chocolate with marshmallows, por favor/bitte). This is important because we must survive day-to-day just like we survive the huge things, like cancer, loss, divorce, unemployment, depression, and the list of terrible things unfortunately goes on into infinity. In a film I created for one of my Ethnic Studies classes this semester (Representation of Native Americans in Modern Media), my narrative talks about overcoming the odds only to still feel lost and wandering. Folks, this is unfortunately how life is--we are always going to feel lost and wandering except for those several euphoric moments when we have a concrete understanding of where and who we are. So we just need to know when and how to get back up after losing balance while wandering. This is something we can learn from one another starting the moment you realize that we each hold this incredible power to learn from one another through communication and just giving a damn about others (even if we don't know them so well or don't think particularly highly of them). The simplest and most effective way I do this is through writing, which I only rediscovered now. Three years ago, this is something I utilized frequently. I just saw that I had 108 posts on my CaringBridge in the 9 months of treatment I endured. So I've come in a circle, and I'm glad to be in that place again because I can reconnect with those lessons I learned as a person fighting cancer now as a cancer survivor fighting to get by in the world. 

I think I ought to get working on one of my papers. Better to be productive now that trying to do it all in one day...never works. If any fellow students read this, good luck on your finals and believe in the effort you have already put into the class. Have faith that these past three/four months have not been for nothing. For people who are not college students, tomorrow is hump day. Chin-up and take in your scenery. What are you grateful for? What gave you reason to show up at work (or just wake up) this morning (apart from the fact your obligated to)? 

Take a breath. Enjoy life. Live in the moment.

With care,

Keil 
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