This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
Apr 28-May 04

This Week

Ashley hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

From Ashley
This little man has upped his feedings to 30MLs from 27. His oxygen has been at 22-24% most of the day ... 21-22% is what you and I breathe. So that is very exciting! His c-pap is at 6 which is like the lowest they usually go. Keagan is gaining weight nicely. He is so chubby compared to the first pictures I posted of him. You can really tell in the legs and the chin... He has a double chin now and he can finally wear an identification bracelet on his leg! Just a few more grams and he will be 4lbs. Hard to believe just a few weeks ago he was just under 3 pounds. His last spell was on the 14th... 2 more days and we will have gone 5 days without a spell! Just have to really work on keeping that body temperature regulated by himself. Keagan will also have an eye exam coming up this next week or the week after sometime. Then another routine brain ultrasound. Keep us in your thoughts and prayers ... Cause it's working! Love, this proud mama!

Read the latest Journal Entry

SVG_Icons_Back_To_Top
Top