Katie’s Story

Site created on June 25, 2011

Welcome to our CaringBridge website. We've created it to keep friends and family updated about our loved one. Get started by reading the introduction to our website, My Story.Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guest boxKatie's first journey started in June of 2011. Katie was feeling joint pain and fatigue which we thought (and the doctor also thought) was the result of numerous sporting activities (volleyball and badminton camps plus tennis drills and softball games). Then she started complaining of dizziness during those activities which we thought was the result of the heat wave we were having. Finally Wednesday night we noticed a number of pretty bad bruises on Katie that she could remember getting. We called the doctor again and they said it was time to bring her in. Thursday June 23rd, we brought Katie to the doctor. The doctor was concerned by the bruising and thought it might be the result of ITP (a platelet disorder) and we went off to get a blood draw to confirm the possible diagnosis. Unfortunately when she called with the results, she told us she had bad news. Katie's white blood cell counts were very high and platelets very low which indicated that she might have leukemia. She then told us to pack a bag for a couple of days and head immediately to Childrens Memorial Hospital. At Childrens, after a battery of blood tests, they confirmed that Katie did in fact have leukemia. However, they did not know what kind which would determine her prognosis and treatment plan. To do that, they needed to test her bone marrow and check her spinal fluid. Friday, June 24th, they put Katie out and extracted bone marrow and did a spinal tap to test her spinal fluid. In a world of very bad news, we finally got some good news. Katie has preB ALL Leukemia -- the most common form of leukemia in children. Unfortunately she is in the high risk category because of her age (older than 9.9 years) and her white blood cell count at diagnosis (over 50,000). This means that she will be taking some extra drugs as part of her treatment. However, most of her treatment will be outpatient which is very good given that she will be in treatment for at least 2 years and 3 months. The other good news is that the leukemia was not in her spinal fluid. Katie finished chemotherapy in October 2013 and got back to regular life. She made the badminton and tennis teams in high school and we traveled extensively to Spain, California many times and finally to Bora Bora for her Make A Wish Trip.Unfortunately at the end of Katie's Make A Wish trip, things started to change health wise. We finally ended up bringing to a hospital in Tahiti and discovered that Katie's leukemia had relapsed. After many trying days getting her back to Lurie, we are finally back in Chicago and Katie is starting chemotherapy treatment again. In December 2016, Kate finished chemotherapy for her relapse and in Fall 2017 headed to the University of Michigan. However we learned in March 2018 that her leukemia had returned yet again. Although devastated by the news we are gearing up for battle again. As we get time to stop and breath on this part of our journey, we'll try to give you an update. We thank you in advance for keeping Katie and us in your thoughts and prayers. We need those more than you know to get through this new journey we are on. Love, Katie, Joan, Jim and Maddie

Newest Update

Journal entry by Joan Vander Linde

It is 3 months ago today that Kate passed away. In some ways it seems like yesterday and in others it feels like an eternity. I think we all are still are in disbelief that she is gone. If anyone was going to beat the odds, it was Kate. Unfortunately there was just too much to overcome even for the amazing Kate.

So we are now left with celebrating her birthday tomorrow without her. Last year we did not celebrate it until after her birthday but that's because she was having fun celebrating it at Michigan with her friends before she came home for spring break. Sometimes it seems easier to not celebrate it and just treat it like another crappy day without Kate. However, we are never one to take the easy path. For as long as we are able, we will do our best to truly celebrate Kate's birthday and Kate. We will celebrate it because Kate and the life she lived is something to celebrated. Our lives are so much richer for having her in them. We celebrate the tons of love, compassion and laughter she gave all of us during her 19 3/4 years (Kate always liked to specific about her age). We will even celebrate the many times Kate could be stubborn and opinionated because that was also part of who she was.

Many have asked how we are going to celebrate Kate's birthday. We plan to celebrate in the way Kate preferred. This may surprise you but Kate did not like big birthday celebrations. She liked to just celebrate it with family and maybe a close friend. Food was always a big part of the celebration. It was amazing the Kate was not 200 lbs given how much she loved food. So tomorrow we will celebrate Kate doing what gave her joy -- going out to dinner with family. We also may get a Fontano's sub for lunch, another Kate favorite. Maddie and I plan to get pedicures -- we all know how  Kate loved having her nails on fleek (i.e. look great).

We would love it if you also would celebrate Kate's birthday in some way. Do it by doing something that brings you joy, whether it be eating your favorite food with family and/or friends like Kate did, watching bad tv (another Kate fav), exercising (not a Kate fav), etc. Let you heart not your mind guide you. Also if you get a chance take a picture of your celebration and post it on Facebook or Instagram and tag Kate or us so we can see it.

Another birthday favorite of Kate's was the gifts. We would receive her wish list shortly after Christmas, always with links for easy buying. If you want to do some type of gift for Kate's birthday this year, Relay for Life at the University of Michigan (Kate was very involved while at Michigan) has set up a fundraiser to honor Kate (Team Kate is #3 in fundraising). Here is the link:
https://www.crowdrise.com/o/en/campaign/mrelay-fundraiser-in-memory-of-kate-palermo 
Thanks to many of  you who have already given!
We also want to say a big thanks for all the love and support you have shown us the last 3 months. Although it has been the most difficult time of our lives, it would've been so much worse without you. We are truly blessed.
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