Kathy’s Story

Site created on July 21, 2018

In May I was diagnosed with Triple Negative Breast Cancer.  Its the rarest form of breast cancer and I do not fit the "typical" profile.  Within a month I had lab tests, biopsies, Mri, Mri with contrast, more biopsies, and CAT scans.  I had a procedure to have a port implanted to make my blood draws and chemo easier to access, due to the number of sticks.  Because I do not fit the typical demographic profile, I am also participating in a genetic study.  There is a possibility that I have tested negative for HER2 gene and this study will also give clarity.  I eat healthy, exercise, spiritual health is good, no drugs, no smoking, and occasional alcohol. My only negative lifestyle factors are stress, carrying hurt, and my sleep is not consistent.

I was not excited at all about chemo; matter of fact I was determined not to do chemo, until I became educated on my type of cancer tumors.  I have 5 tumors, three are malignant.  Because I am Triple Negative my chance of survival is 77%; however, if I have a reoccurrence within 3 years it drops
to 22%.  There is a good chance my cancer is more of an autoimmune problem.  I tried to get immunotherapy however in the USA it is not approved yet for breast cancer.  However, I was able to find a study that I was lucky enough to be able to participate in.  It is a double blind study.  There are 1500 participants nationally.  750 will get immunotherapy, 750 will get a placebo.  Because there is a chance to get a placebo conventional chemo, surgery and radiation will still be given.  So in essence I may be getting hit with both therapies.  Its pretty intense.  22 weeks of chemo and immunotherapy, 2 weeks off, surgery, then 5 and a half weeks of daily radiation.  

I am going to document my journey through photos.  Feel free to follow my journey through the photo gallery.  I will have weekly updates only through photos documenting my journey.  

Thank you to all for the prayers, cards, well wishes, meals, and love.  I feel very BLESSED and I am extremely humbled by the outpouring of support.  It means so much.  I am not scared.  I know in my bones I will be healed.  Gods got this. 


Love to all,


Kathy

Newest Update

Journal entry by Kathy Rawlings

Please pray for Matt Golczewski who is battling stomach cancer,  He is a fighter.  He is only 24/25 years old.  He will be going into surgery this afternoon please pray for healing and that the surgeons hands are guided by God.  

Please pray for the family of Kristine Gilmore who bravely fought, but, lost her battle to cancer last week.  She leaves a loving husband and two small children.  Her parents and sister and a whole community are grieving, pray for peace and comfort.  Kristine also had triple negative.

Please pray for my sister Lisa, Chrissy, and Jen.  All currently in treatment.  

Its been awhile since I posted anything...  I continue to remain cancer free.  I still fight with insurance companies on getting tests.  To this day, I have NEVER had a pet scan, as the insurance company deemed it "medically unnecessary". I have had CT scan with contrast.  And I paid out of pocket to get a brain scan.  The only thing that has not been scanned are my bones.  My liver enzymes are a tad high which is a little perplexing.  In March if my liver enzymes don't return to normal I will be sent for a bone scan.  

I pray for a cure for cancer.  I often wonder if there isn't a cure already.  I pray that immunotherapy quickly gets FDA approval.

God is good,

Kathy
Patients and caregivers love hearing from you; add a comment to show your support.
Help Kathy Stay Connected to Family and Friends

A $30 donation to CaringBridge powers Kathy's site for one month. Will you make a gift to help ensure that this site stays online for them and for you?

Show Your Support

See the Ways to Help page to get even more involved.

Personal Fundraiser
Support Links
Helpful Tasks
SVG_Icons_Back_To_Top
Top