Kaleb’s Story

Site created on July 22, 2020

My 23 year old son, Kaleb Konoff. is a living, breathing miracle.  I, Maria Claus, am his mother and am glued to his side throughout his stroke journey. 

Kaleb had a massive stroke, July 3rd, 2020 while working out in the gym, while on deployment through the US Airforce, in a foreign country.  The original hospital down range assessment was that he had a seizure.  He was air lifted to Landstuhl, Germany for further evaluation.  Upon arrival, the MRI showed that Kaleb had a massive stroke.  The surgeon rushed Kaleb into emergency surgery to relieve the presure in his brain, which ultimately saved his life.  

Since that day, his dad and I have been by his side to be his advocates.  Kaleb's siblings, Kate and Paul, were by his side in Germany and were great advocates, caregivers and managers of getting all of us to be by his side in Germany.  We were the first American family allowed in the country due to COVID restrictions.  The Airforce and a program called SOCOM have been instramental in arranging and covering air fare, lodging, rides, per diem while we traveled alongside of Kaleb.  These programs have been phenominal and we are so blessed to have been able to concentrate solely on Kaleb.  

Kaleb left Landstuhl, Germany and arrived at Walter Reed National Medical Military hospital in Bethesada, Maryland on Friday, July 17th.  

Kaleb spent a lot of time sedated in Germany, in order to reduce brain swelling and regulate vitals. He had two previous attempts at getting off the breathing tube while in Germany, but wasn't strong enough.  On Sunday, July 19th, the medical team pulled the tube.  I was so thankful that the dr requested to give removing the breathing tube one more shot before automatically inserting a trach.  

Today is Wednesday, July 22nd.  Kaleb is currently in ICU and his disabilities to date include loss of speach, use of his right side, right eye impairment, blood clots in his lungs and arms and collapsed lung chambers.  Kaleb has struggled with his oxygen rate as well as excessive coughing and drooling, high blood presure and heart rate. All issues are being addressed and small improvements continue to be made.  Each morning a team of doctors and interns meet to review test results and vitals as well as review physical therapy, speach therapy, psychology and nutrition.  I am very impressed with the medical teams and thank God daily for the amazing medical facilities Kaleb has received treatment at in Germany and the U.S.

My sweet guy has been through so much.  As I write this, he is snoring, and getting the best rest since Friday.  He still has his humor!  He flipped his brother and nurses off in Germany, throws his stuffed teddy bear, that his friends Frances, Brad and family bought him.  Kaleb and I play thumb war and he arm wrestled with a nurse in Germany and won!

Each second, minute, hour, day is a treasured blessing with my Special K.  


We are so grateful for the following two organizations who have helped us in unimaginable ways.  

https://www.socom.mil/care-coalition


https://fisherhouse.org


(https://www.caringbridge.org/assets/ugc/18/67/52/5f188c63acd8c065328b45b0.jpg)

Newest Update

Journal entry by Maria Claus

Hello and happy Tuesday!  

Kaleb has been in his vocational rehab for 10 months now!  The purpose of the rehab was job readiness, and after 10 months, K is ready!  Last week he was offered a job at Ability360, the adaptive gym he has been volunteering at.   He and I are so very happy, as this is the job that we both hoped he would get.  Ability360 is where we immersed ourselves when we first moved here almost two years ago.  They have adaptive outdoor outings as well as many indoor team opportunities.  Kaleb is currently involved in power soccer at Ability360.  Kaleb meets with HR tomorrow, he will work 2 days a week and hopefully keep his volunteer job there as well.  

Now that Kaleb has received a job offer, his time at CTN (voc rehab) will be coming to an end.  The celebration at the end is called "Cake day"  We haven't gotten a "Cake day" date yet, but it's looming on the horizon.  At voc rehab, Kaleb attends sessions/classes to rehabilitate Kaleb on all sorts of subjects.  Memory, cognition, vocation, group and single psych therapy.  The best part of rehab is that Kaleb has met so many guys and gals in his same situation and has made so many new friendships.  CTN focuses on awareness, acceptance and realism.  

We have been waiting almost two years to hear if Kaleb will be chosen as a recipient of a Gary Sinise Smart House.  Kaleb got the final interview call last night while he was at soccer practice!  I think the smile on his face, tells the answer....  if there is any doubt, he was chosen!  I think that will be his forever best birthday present!  The process could be a couple years long.  We are excited non the less!  Kaleb picks which city he wants to build the house in.   

About a month ago, Kaleb elected to have a device, that helps control frequent urination, implanted in his lower back.  There are over 400 settings, Kaleb is currently in progress to finding the right one that will allow him to sleep through the night.  The device is compared to a pacemaker, only much smaller.   

Next up in exciting news, Kaleb is in the process of scheduling an appointment with the driving school that has hand controls.  His last vision test showed that he would most likely get a license at this point, however, it's his reaction time and coordination that is a concern (which has been being addressed in the last 3.5 yrs of therapy).  He traded the Sienna Van for  a Traverse which has seats that swivel using a remote, for him to be able to drive up the ramp in his wheelchair and then transfer from his chair to the drivers or passenger seat from the inside of the car.  

Kaleb flew in friend David Moore's plane this last weekend, over Phoenix, with his brother Paul, dad and friends.  He certainly has been showered with great fun/blessings/gifts this birthday!  

So much good news, without a shadow of a doubt, we are blessed!

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