Journal entry by Diane Diven —
Joys appointments on Tuesday seemed to last forever. We have some updates about our girl.
Joy is about 80% recovered from her brain infection and the resulting damage. Doctors are hoping she continues to recover, her brain is still growing ( the best news).
Joy has been having some unpleasant side effects from her seizure medication. So after much discussion ( over an hour between the neurosurgeon and neurologist ) it was decided to wean Joy off of her current medication and wait 6 months.
This is a slow wean… because momma insisted ( ya know, me being me) and then we wait and see. Joy is on a seizure protocol and we will be watching her closely.
Please pray that Joy can handle this and that we don’t drive her crazy keep a tight leash on her activities.