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May 05-11

This Week

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It's been awhile since I've updated you all. I apologize for the delay. That is always a good sign because it means I don't have as much time on my hands because I'm busy with Josiah which means he's doing better!

Since our last update, not much has happened besides a few BIG things. I mentioned in the last update we would have to see if he could come off of an IV med. Well, he flew off of it and didn't blink an eye. He has been off of it for a whole week now and looking great. Through all the changes, his echo (ultrasound of the heart) has continued to remain unchanged (still depressed functions) so the doctors have been super cautions with sending us home. Josiah just continues to show them how strong he is. He's excelling their expectations. 

At first, they assumed he would have to go home on IV meds. If not that, they assumed we would be here through Thanksgiving. They assumed he wouldn't be able to eat by mouth (so they put the G-tube in) and now Josiah is off IV meds, we are going home weeks before Thanksgiving and he is eating bigger bottles then he was before this all even happened! So he has literally blown everyone out of the water. 

This morning they did an echo of his heart again and said it looked the same but maybe a tiny bit better, so we will take it! The good news, that means we get to go home, just in time to enjoy the rest of fall and Thanskgiving. This year, we have so much to be thankful for! God is so great and he truly is living up to Josiah's name "Jehovah will support." I am confident that God will continue moving in Josiah's healing. 

Going forward, Josiah is on a lot of medications and will be monitored much closer to see if his heart recovers. In 6 months, they will do a repeat MRI to look at the heart muscle and see how much it healed vs how much scar tissue has formed. The hope is that his heart fully recovers, or enough to make it to the third surgery when he is 2-4 years old. If not, then we will just go from there and let him tell us when he needs a heart.

No matter which path, we are just going to enjoy each day like there is no tomorrow! This experience has been a hard one this last month, but it has made everything sweeter in life and giving a new perspective to my days. I will make these holidays be as if they are our last because we are never promised tomorrow. The time is now to love the people in your life. The time is now to tell those you appreciate them. The time is now to be with family. 

Thank you for all your love and prayers through this journey. God sure has been faithful and answering them. We are beyond excited to continue watching God move in Josiah's life. 

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