Joshua’s Story

Site created on September 26, 2023

*Quick note, donating to Caring Bridge ( a tribute) is not a donation for my family. Use this link for our GoFundMe page: https://gofund.me/61e43429

In September 2023, we found out that my sweet husband, Joshua, has an inoperable brain tumor. Since then, we have learned so much more through a biopsy in early October. Joshua has not only an inoperable brain tumor, but he has a stage 4 glioblastoma. It is in his right basal ganglia, which affects his whole left side. Although we are grateful that he is still cognitively himself, it is hard to go from playing a pick up soccer game on 8/27/23 to struggling to stand up and pivot from place to place just a short time later.

A lot of friends and family have asked how to help.  Please look under the Ways To Help Tab.


Go Fund Me: Joshua is the primary bread winner and health insurance provider in our family, and as with most families these days, we don't have a lot of extra funds to cover a prolonged time off from work for either one of us or medical expenses. Anything sent to our family through GoFundMe, Venmo, Zelle, PayPal etc is being saved or used for the big expenses. It covered a power chair, a bridge to a donated lift and his upcoming Optune bill that will max our out of pocket cost for 2024 very quickly. Soon, it may start to cover health insurance for our family because his paid leave and FMLA are up. https://gofund.me/61e43429


Meal Train: To take a little load off of my plate as a caregiver, we have an ongoing meal train. It helps beyond measure to just not have to think about what's for dinner twice week. Thank you to everyone who has participated. https://www.mealtrain.com/trains/0em5g9

Big thank you to all of our friends and family for your support. We are going to need it. Love, Sara

Newest Update

Journal entry by Sara Oehler

Another MANIC Monday, and I even took the day off from work. 

The big news today is that Joshua’s bloodwork levels are so poor, they asked him to not take the last dose of chemo. I’m currently sitting at the pharmacy trying to fill an order for two different kinds of antibiotic. Thankfully, he seems okay just really, really, really tired. 

I hit a wall last Sunday. I freely admit, I cried the big ugly cry. It was a relief. It’s been several weeks since my last big, ugly cry. I can only be so strong for so long. What is needed of me right now, by so many people, is overwhelming. So I took a few days off work to recover. It took the edge off today, but I still haven’t stopped moving and doing since I woke up. It’s all day, everyday - intense. Trying to figure out forms, make appointments, manage prescriptions, school, work. I feel like I write this every week. It just all continues to be too much and so much of it I have to do myself. It is extra hard when Joshua feels so unwell. He needs extra care, extra runs to the pharmacy, extra coordination for appointments. It’s hard to keep giving when you are all tapped out. And, I don’t sleep well when I am so worried about him. 

My meds are ready, off to the next thing that has to be done.
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