Joseph ’s Story

Site created on February 1, 2020

In January of 2020 Joe went into the hospital thinking it was a routine scan of his kidneys. He found out he was in acute kidney failure resulting from Multiple Myeloma (MM)  and Amyloidosis. Three weeks later Joe was on dialysis and chemotherapy. After 8 months of chemotherapy Joe went through a stem cell transplant which seemed to put the MM into remission. He also moved from end stage renal failure to stage 3 no longer needing dialysis. In August of 2022 Joe found that the cancer had returned. 

Newest Update

Journal entry by Joseph Milioni

Timing is everything. This week, I met with my doctor and concluded that if my numbers went up again, it meant a trend and that my current treatment wasn't working. If that happened, then we would begin the process of getting into a new treatment.  Because I have both multiple myeloma and amyloidosis, it is a little more complicated because I don't qualify for a lot of the clinical trials. Since I was first diagnosed, I have been studying the potential of car-t therapy.  Last week, the FDA approved the most effective version for patients like me.  All that to say, my numbers did go up, but only slightly. The timing is complicated because we have to switch insurances, and the new one starts next week. Timing is complicated with a new granddaughter on the way, and CAR-t would require Ladaere and I to be away from home for at least 30 days to monitor complications. We continue to put our trust in the one who controls time.  

Pray for wisdom on timing for the next steps and that everything will go smoothly when arranging the treatment. 

If you would like to know more about CAR-T, you can watch the 2-minute attached video. 

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