It’s been a little while since I have posted on here. This whole pandemic thing has really changed things up in our house.
Jon’s still recovering well from surgery on March 5th. However, the road to get to where he is now has been anything but easy. While the physical pain was not nearly as bad after this surgery the side effects have been his biggest hurdles.
Jon attends occupational therapy once a week to regain strength in his left had. He is making such great progress with the help of his therapist. He has also just recently decided to take up banjo lessons again! This will help him with his finger and hand movements as well!!! It will also allow him to find some time for himself doing something he enjoys!!
On April 13th Jon started his immunotherapy therapy as well as his avastin treatments (IV infusions). These treatments will be done every three weeks (next one is May 4th). He tolerated the treatments like a champ! However, there have been many side effects that have come along with this treatment. All ranging from short term memory issues, headaches, seizures and exhaustion. While his doctor does not see these side effects as a concern and believes they will go away as time goes on we can only pray that he doesn’t have to experience them for much longer. I do not like seeing him in pain and at times not remembering something we just talked about. 💔
On top of the IV infusions Jon started radiation on April 27th at Hoag hospital. He will be continuing radiation until May 1st. This round of radiation is is extremely short but is the absolute last round his body can receive. The radiation is suppose to work injunction with the immunotherapy! So once again let’s pray that this is the case.
Overall, Jon is doing well! Some days are harder than others but the good days definitely out weigh the bad. We are enjoying our family walks everyday and enjoying building these small precious moments with the twins we will never get back.
Please continue to pray for Jon!
Do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand. Isaiah 4:10
