love,

thinking of you. glad you're doing things you love (or passing them on to the ones you love). xx mid

What? there's a brain in there? and you've been hiding it all this time ... :)

Haha...a tough letter to write, I know. Love you, and look for an email a'comin...

Although no British, please keep a 'stiff upper lip' and carry on. Missed you out on the bay Thursday evening in September.

Merry Christmas and Happy New year to great neighbors. Please do not hesitate to ask for help. I'm here most days and can help if you get into a pinch.

This is great news Jonathan. You and your family have been through a lot. I wouldn't wish what you have been through especially the big swings of bad and good news, mostly negative, on my worst enemy; luckily I have few. Stay positive and lick this.

Hey Jon! Love your posts here. I like the emails even better. Looks like you may be visiting Maryland in the future. If you do you're going to have to find a way to shove a crab cake down that feeding tube. LOL! All the best. Hope to see you soon. Cos

Love you.

Hi Jonathon, Your journey is a tough one with so many ups & downs. With this diary entry it seems more downs than anyone wants. Hope your referral to Boston specialist will give positive results and you are able to participate in a medical trial.