Johnny’s Story

Site created on May 2, 2019

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. Please share with others that might be interested.

Johnny Robert Kent entered this world on April 29, 2019 and our lives have never been the same since! Johnny was born with Down syndrome which means that he will likely grow up and experience some challenges that not everyone does, and in turn, will result in a different type of journey for our family. With that said, we could not be prouder to be his parents and our hearts are continually bursting with love and joy for this incredible boy. He truly makes our lives better.

Thank you for all the love and support. We are forever grateful to have you on this ride with us!

Kate and Ross Kent

Newest Update

Journal entry by Kate Kent

Normal sinus rhythm that is! If he inherited his mother’s musical aptitude that’s the only rhythm he’ll have 🤦‍♀️

All tests from his follow up appointment indicate that his heart is functioning 100%. Our cardiologist said repair looks beautiful, his rhythm is back to normal and the remaining fluid around his heart is gone! We have one more follow up appointment in 2 weeks to triple check before we start his long term care plan (3 month post op, then once per year).

We couldn’t be happier or more relieved. The thought of another surgery right now was really hard for us to fathom. Thank you again for all the love and support. It’s been a wild journey this past month especially with COVID stress on top and although we haven’t been able to see each other physically, we feel the connection, support and love from you all.
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